Résumés
Résumé
La souveraineté des données des Premières Nations est une lutte essentielle dans le contexte colonial. En fonction de l’objectif général d’autodétermination, les dirigeants des Premières Nations ont réclamé la mise en place de principes qui affirment la propriété, le contrôle, l’accès et la possession des données et des informations des Premières Nations – les principes PCAP®. Ces principes ont été appliqués tant à l’échelle nationale que régionale dans le cadre de l’Enquête régionale sur la santé pilotée par le Centre de gouvernance de l’information des Premières Nations (CGIPN) et, au Québec, par la Commission de la santé et des services sociaux des Premières Nations du Québec et du Labrador (CSSSPNQL).
Mots-clés :
- Premières Nations,
- souveraineté des données,
- PCAP®,
- enquête régionale sur la santé,
- CSSSPNQL
Abstract
First Nations data sovereignty is an essential terrain of struggle in the settler colonial context. As part of the overall aim of self-determination, First Nations leadership have mandated the creation of principles that assert First Nations ownership, control, access, and possession of their data and information – the OCAP® principles. These principles have been exercised both nationally and regionally through the Regional Health Survey stewarded by the First Nations Information Governance Centre (FNIGC) and, in Quebec by First Nations of Quebec and Labrador Health and Social Services Commission (FNQLHSSC).
Keywords:
- First Nations,
- data sovereignty,
- OCAP®,
- regional health survey,
- CSSSPNQL
Parties annexes
Bibliographie
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