Résumés
Résumé
Pendant la pandémie de la covid-19, la population s’est tournée vers des espaces d’échanges en ligne consacrés à la santé pour chercher du soutien social. Cet article vise à comprendre comment les demandes et l’offre de soutien social se jouent à travers les courts récits qui se construisent au cours des interactions entre les membres d’un groupe Facebook brésilien pendant la pandémie. Nous appuyant sur une démarche ethnographique et sur l’approche narrative des Small Stories , nous montrons comment le soutien social opère à travers deux genres de récits : les positionnements narratifs et les histoires parallèles. Dans ces dernières, les prescriptions sont construites comme des positions morales à adopter pour la gestion de l’anxiété à la suite d’un diagnostic de covid-19. Les résultats de la recherche font émerger plusieurs réflexions sur le fonctionnement du soutien social en ligne.
Mots-clés :
- soutien social,
- récit en ligne,
- anxiété,
- pandémie,
- Small Stories
Abstract
During the COVID-19 pandemic, people sought social support in online spaces dedicated to health. This article aims to understand how members of a Brazilian Facebook group asked for and offered social support through online narratives constructed in their interactions during the pandemic. Based on an ethnographic approach and the Small Stories Research, we have shown that social support operates through Narrative Stancetaking and Second Stories. In the latter, prescriptions are constructed as moral positions that should be adopted to manage anxiety following a COVID-19 diagnosis. This research provides reflections on the functioning of social support online.
Keywords:
- social support,
- online narrative,
- anxiety,
- pandemic,
- Small Stories
Parties annexes
Bibliographie
- Ablali, D. et Wiederspiel, B. (2015). Quand le lien numérique maintient le fil narratif des personnes en souffrance. Communication & langages, (186). https://doi.org/10.3917/comla.186.0077
- Akrich, M. et Méadel, C. (2009). Les échanges entre patients sur l’Internet. La Presse médicale, (38), 1484-1490. https://doi.org/10.1016/j.lpm.2009.05.013
- Bamberg, M. et Georgakopoulou, A. (2008). Small Stories as a New Perspective in Narrative and Identity Analysis. Text & Talk, 28(3), p. 377-396. https://doi.org/10.1515/TEXT.2008.018
- Bülow, P. H. (2004). Sharing Experiences of Contested Illness by Storytelling. Discourse & Society, 15(1), 33‑53. https://doi.org/10.1177/0957926504038943
- Birman, J. (2020). O trauma na pandemia do Coronavírus [1re éd.]. Civilização Brasileira.
- Bury, M. (1982). Chronic Illness as Biographical Disruption. Sociology of Health and Illness, 4(2). https://doi.org/10.1111/1467-9566.ep11339939
- Caron, J. et Guay, S. (2005). Soutien social et santé mentale : concept, mesures, recherches récentes et implications pour les cliniciens. Santé mentale au Québec, 30(2). https://doi.org/10.7202/012137ar
- Cherba, M., Thoër, C, Turbide, O., Denault, V., Renaud, L., Valderrama, A., Courcy, I., Cordelier, B., Laquerre, M. E., Cyr, C., Hovington, J. et Muloin, C. (2019). Le soutien social en ligne comme mode d’intervention psychosociale : revue de littérature, pistes de recherche et recommandations pour les intervenants. Santé publique , 31 (1). https://doi.org/10670/1.12g7oe
- Collins, H. M. et Evans, R. (2002). The Third Wave of Science Studies - Studies of Expertise and Experience. Social Studies of Science, 32(2), p235-296. http://www.jstor.org/stable/3183097
- De Fina, A. et Georgakopoulou, A. (2008). Analysing Narratives as Practices. Qualitative Research, 8(3), 379–387. https://doi.org/10.1177/1468794106093634
- Feuston, J. L. et Piper, A. M. (2019). Everyday Experiences: Small Stories and Mental Illness on Instagram. CHI 2019 Paper, Mai 4–9. https://doi.org/10.1145/3290605.3300495
- Fiocruz. (2020). Resultados da ConVid: Pesquisa de comportamentos. https://convid.fiocruz.br/index.php?pag=estado_saude
- Gauducheau, N. (2012). Internet et le Soutien Social [chapitre 4]. Dans C. Thoër et J. J. Lévy (dir.). Internet et santé : acteurs, usages et appropriations. Presses de l’Université du Québec.
- Giaxoglou, K. (2021). A Narrative Approach to Social Media Mourning: Small Stories and Affective Positioning. Routledge. https://doi.org/10.4324/9781315268675
- Georgakopoulou, A. et Bolander, B. (2022). ‘New Normal’, New Media. Covid Issues, Challenges & Implications for a Sociolinguistics of the Digital. Working Papers in Urban Language & Literacies, 296, 1-19. https://kclpure.kcl.ac.uk/portal/en/publications/new-normal-new-media-covid-issues-challenges-amp-implications-for
- Georgakopoulou, A. (2017a). Sharing the Moment as Small Stories: The Interplay Between Practices & Affordances in the Social Media-Curation of Lives. Narrative Inquiry, 27(2), 311-333. https://doi.org/10.1075/ni.27.2.06geo
- Georgakopoulou, A. (2017b). Narrative/Life of the Moment: From Telling a Story to Taking a Narrative Stance [chapitre 3]. Dans B. Schiff, E. McKim et S. Patron (dir.). Life and Narrative: The Risks and Responsabilities of Storying Experience (p.128-173). Oxford University Press. https://doi.org/10.1093/acprof:oso/9780190256654.001.0001
- Georgakopoulou, A. (2016). From Narrating the Self to Posting Self(les): A Small Stories Approach to Selfies. Open Linguistics, 2, 300-317. https://doi.org/10.1515/opli-2016-0014
- Herbert, C., Rioux, C. et Brunet, A. (2012). Les usages d’Internet par les personnes souffrant de troubles de santé mentale [chapitre 8]. Dans C. Thoër et J. J. Lévy (dir.). Internet et santé : acteurs, usages et appropriations (p.177-204). Presses de l’Université du Québec.
- Huisman, D. (2022). Introduction. Dans D. Huisman (dir.). Social Power and Communicating Social Support: How Stigma and Marginalization Affect our Ability to Help (p.1-22). Routledge. https://doi.org/10.4324/9781003144823
- Illouz, E (2003). Pain and Circuses. Dans E. Illouz (dir.). Oprah Winfrey and the Glamour of Misery : An Essay on Popular Culture (p.77-119). Columbia University Press.
- Koury, M. G. P. (2021). Cotidiano e Pandemia no Brasil: Emoções e Sociabilidades [1er éd.]. Grem-Grei Edições.
- Neves, A., Ismerim, A., Brito, B., Costa, F. D., Santos, L. R. P., Senhorini, M., Silva Junior, N., Beer, P. A. C., Bazzo, R., Gonsalves, R. L. C., Coelho, S. P. t Carnizelo, V. C. R. (2020). A psiquiatria sob o neoliberalismo: da clínica dos transtornos ao aprimoramento de si. Dans V. Safatle, N. S. Junior et C. Dunker (dir.). Neoliberalismo como gestão do sofrimento psíquico (p. 172-244). Autêntica.
- Ochs, E. et Capps, L. (2001). Living Narrative: Creating Lives in Everyday Storytelling. Harvard University Press. https://doi.org/10.2307/j.ctv2d7x4pr
- OMS (2022). Mental Health and COVID-19: Early Evidence of the Pandemic’s Impact. Scientific Brief. https://www.who.int/publications/i/item/WHO-2019-nCoV-Sci_Brief-Mental_health-2022.1
- Page, R. (2018). Introducing Shared Stories [chapitre 1]. Dans R. Page (dir.). Narratives Online: Shared Stories on Social Media (p.1-25). Cambridge University Press. https://doi.org/10.1017/9781316492390
- Page, R. (2012). Stories and Social Media. Identities and Interactions. Routledge. https://doi.org/10.4324/9780203148617
- Page, R. (2011). Blogging on the Body: Gender and Narrative. Dans B. Thomas (dir.). New Narratives: Stories and Storytelling in the Digital Age (p.220-238). University of Nebraska Press. https://doi.org/10.2307/j.ctt1df4h49
- Pols, J. (2014). Knowing Patients: Turning Patient Knowledge into Science. Science, Technology & Human Values, 39(1), 73‑97. https://doi.org/10.1177/0162243913504306
- Poole, R., Smith, D. et Simpson, S. (2015). JMIR Mental Health, 2(3). https://mental.jmir.org/2015/3/e21/
- Rocha, L. (2021). O que são ondas da Covid-19 e por que o Brasil pode estar diante da terceira. Article de CNN Brasil publié le 30 mai 2021. https://www.cnnbrasil.com.br/saude/o-que-sao-ondas-da-covid-19-e-por-que-o-brasil-pode-estar-diante-da-3/
- Santomauro, D., Herrera, A., Shadid, J., Zheng, P., Ashbaugh, C., Pigott, D., Abbafati, C. A., Amlag, J., Aravkin, A., Bang-Jensen, B., Bertolacci, G., Bloom, S., Castellano, R., Castro, E., Chakrabarti, S., Chattopadhyay, J., Cogen, R., Collins, J., Dai, X., Dangel, W., Dapper. C., Deen, A., Erickson, M., Ewald, S., Flaxman, A., Frostard, J., Fullman, N., Giles, J., Giref, A., Guo, G., He, J., Helak, M., Hulland, E., Idrisov, B., Lindstrom, A., Linebarger, E., Lotufo, P. A., Lozano, R., Magistro, B., Malta, D. C., Mansson, J., Marinho, F., Mokdad, A., Monasta, L., Naik, P., Nomura, S., O’Halloran, J. K., Ostroff, S., Pasovic, M., Penberthy, L., Reiner, R., Reinke, G., Ribeiro, A. L., Sholokhov, A., Sorensen, R., Varavikova, E., Vo, A. T., Walcott, R., Watson, S., Wiysonge, C. S., Zigler, B., Hay, S., Vos, T., Murray, C., Whiteford, H. et Ferrari, A. (2021). Global Prevalence and Burden of Depressive and Anxiety Disorders in 204 Countries and Territories in 2020 Due to the COVID-19 Pandemic. The Lancet, 398, 1700-1712. https://doi.org/10.1016/ S0140-6736(21)02143-7
- Shanahan, M. C. (2010). Changing the Meaning of Peer-to-Peer? Exploring Online Comment Spaces as Sites of Negotiated Expertise. Journal of Science Communication, 9(1). https://doi.org/10.22323/2.09010201
- Thoër, C. (2012). Les espaces d’échange en ligne consacrés à la santé [chapitre 3] Dans C. Thoër et J. J. Lévy (dir.). Internet et santé : acteurs, usages et appropriations (p.57-92). Presses de l’Université du Québec.
- Turbide, O., Cherba, M. et Denault, V. (2020). Réagir au dévoilement de soi dans un forum de discussions pour les personnes vivant avec un cancer : une approche interactionnelle. Corpus, 21. https://doi.org/10.4000/corpus.4987
- Van Uden-Kraan, C., Drossaert, C. H. C. et Van de Laar, M. A. F. J. (2008). Empowering Processes and Outcomes of Participation in Online Support Groups for Patients with Breast Cancer, Arthritis, or Fibromyalgia. Qualitative Health Research, 18(3), 405-441. http://dx.doi.org/10.1177/1049732307313429
- Vayreda, A. et Antaki, C. (2009). Social Support and Unsolicited Advice in a Bipolar Disorder Online Forum. Qual Health Res. 19(7), 931-942. https://pubmed.ncbi.nlm.nih.gov/19556400/
- Yip, J. W. C. (2024). The Online Communication of Social Support: Structure and Content [chapitre 4]. Dans J. W. C. Yip (dir.). Discourse of Online Social Support: A Study of Online Self-Help Groups for Anxiety and Depression (p.45-64). Springer.
10.7202/012137ar