Résumés
Abstract
Introduction: Research on end-of-life wishes (EoLW) primarily focuses on the elderly or ill individuals, limiting reflection to specific moments within life trajectories. Drawing on Patterson and Hazelwood (2020), this article proposes 4 dimensions of EoLW: medical care, legal considerations, personal priorities, and socio-spiritual well-being. While numerous knowledge syntheses explore EoLW, they primarily focus on the first 2 dimensions, overlooking aspects that are nonetheless essential to true person-centered end-of-life planning. Objective: To map the extent and nature of knowledge on personal priorities and socio-spiritual well-being dimensions of EoLW and to identify trends, gaps, and implications for research and practice. Method: This scoping review follows the 6-step methodology of Levac et al. (2010) and queries scientific (CINAHL Complete, Érudit, MEDLINE, PsycINFO, Social Sciences Abstracts, Social Work Abstracts and Web of science) and grey literature (Dissertations & Theses Global and Sociological Abstracts) databases. Literature published from 2015 onwards, in English or French, will be systematically identified and selected through an independent double anonymous review process. Discussion and Research Spin-offs: We will identify the contexts in which these 2 dimensions are operationalized, the research methodologies used and any knowledge gaps in the current state of research. Engagement with key stakeholders in the 6th stage of this scoping review will facilitate the synthesis of critical insights to better inform practice, influence policy development, and guide future research.
Keywords:
- end-of-life wishes,
- health preferences,
- advanced care planning,
- personal priorities,
- socio-spiritual well-being
Résumé
Introduction : Les recherches sur les volontés de fin de vie (VFV) se concentrent principalement sur les personnes âgées ou malades, limitant la réflexion à certains moments des trajectoires de vie. Inspiré de Patterson et Hazelwood (2020), cet article propose 4 dimensions des VFV : les soins médicaux, les considérations juridiques, les priorités personnelles et l’épanouissement socio-spirituel. De nombreuses synthèses de connaissances explorent les VFV, mais elles se concentrent principalement sur les 2 premières dimensions, laissant dans l’ombre des aspects pourtant essentiels à une planification de fin de vie centrée sur la personne. Objectif : Cartographier l’étendue et la nature des connaissances des priorités personnelles et du bien-être socio-spirituel des VFV, afin d’identifier les tendances, les lacunes et les implications pour la recherche et la pratique. Méthode : Cette revue de la portée suit la méthodologie en 6 étapes de Levac et al. (2010) et interroge plusieurs bases de données scientifiques (CINAHL Complete, Érudit, MEDLINE, PsycINFO, Social Sciences Abstracts, Social Work Abstracts et Web of Science) et de littérature grise (Dissertations & Theses Global et Sociological Abstracts). Les écrits publiés à partir de 2015, en anglais ou en français, seront systématiquement identifiés et sélectionnés selon un processus en double insu indépendant. Discussion et retombées anticipées : Cette revue de la portée permettra d’identifier les contextes dans lesquels ces 2 dimensions s’opérationnalisent, les méthodologies de recherche utilisées et les lacunes dans l’état des connaissances sur le sujet. Durant la 6e étape de cette revue, l’engagement avec des parties prenantes facilitera la synthèse d’informations critiques afin d’éclairer les pratiques, d’influencer l’élaboration de politiques et d’orienter les recherches futures.
Mots-clés :
- volontés de fin de vie,
- préférences en santé,
- planification préalable de soins,
- priorités personnelles,
- épanouissement socio-spirituel
Parties annexes
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