Résumés
Résumé
En milieu résidentiel, le recours aux technologies pour favoriser la réalisation d’activités quotidiennes (p. ex., cuisiner, faire la lessive) par les personnes présentant une déficience intellectuelle (DI) s’avère une solution prometteuse. Toutefois, pour que cette intervention procure les bénéfices escomptés, il s’avère essentiel d’ancrer son déploiement dans la réalité vécue par les participants. L’objectif de l’étude consiste à décrire, à l’aide d’un devis qualitatif longitudinal (trois temps de mesure), le processus d’implantation et d’utilisation des technologies par six adultes présentant une DI pour réaliser des activités quotidiennes. Les résultats issus des analyses thématiques mettent en lumière l’importance de personnaliser l’intervention technologique au profil de chacun et de favoriser leur participation lors de la programmation. L’étude révèle également que les personnes intervenantes occupent un rôle central dans le déploiement. Enfin, l’intervention technologique a produit plusieurs effets chez les participants, la majorité d’entre eux étant positifs (p. ex., amélioration d’habiletés en cuisine, en contexte de conversations et en gestion émotionnelle).
Mots-clés :
- déficience intellectuelle,
- technologie,
- résidentiel,
- activités de la vie quotidienne,
- DI,
- habitation,
- intervention technologique
Abstract
The use of technology to support individuals with intellectual disabilities (ID) in performing daily living activities is a promising solution. However, for such interventions to deliver the expected benefits, it is essential to anchor their deployment in the participants’ lived experiences. The objective of this study is to describe, through a longitudinal qualitative design (three measurement points), the process of implementing and using technologies by six adults with ID to perform daily living activities. Thematic analysis results highlight the importance of tailoring the technological intervention to each individual’s profile and promoting their involvement during the programming process. The study also reveals that support staff play a central role in the deployment of the intervention. Finally, several effects were observed on participants, most of which were positive.
Keywords:
- intellectual disability,
- technology,
- residential setting,
- daily living activities,
- ID,
- housing,
- technological intervention
Parties annexes
Bibliographie
- Ali, M., Zhou, L., Miller, L. et Ieromonachou, P. (2016). User resistance in IT: A literature review. International Journal of Information Management, 36(1), 35-43. https://doi.org/10.1016/j.ijinfomgt.2015.09.007
- American Association on Intellectual and Developmental Disabilities. (2021). Intellectual disability: Definition, diagnosis, classification, and systems of supports (12e éd.).
- Ashley, D., Fossey, E. et Bigby, C. (2019). The home environments and occupational engagement of people with intellectual disabilities in supported living. British Journal of Occupational Therapy, 82(11), 698-709. https://doi.org/10.1177/0308022619843080
- Athorp, S. M., Stuart, S. K. et Collins, J. C. (2022). Building daily living skills through portable video modeling. Education and Treatment of Children, 45(3), 293-297. https://doi.org/10.1007/s43494-022-00077-3
- Auld, C., Foley, K. R. et Cashin, A. (2022). Daily living skills of autistic adolescents and young adults: A scoping review. Australian Occupational Therapy Journal, 69(4), 456-474. https://doi.org/10.1111/1440-1630.12806
- Ayres, K. M., Mechling, L. et Sansosti, F. (2013). The use of mobile technologies to assist with life skills/independence of students with moderate/severe intellectual disability and/or autism spectrum disorders: Considerations for the future of school psychology. Psychology in the Schools, 50(3), 259-271. https://doi.org/10.1002/pits.21673
- Bal, V., So-Hyun, K., Cheong, D. et Lord, C. (2015). Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age. Autism, 19(7), 774-784. https://doi.org/10.1177/1362361315575840
- Balasuriya, S. S., Sitbon, L. et Brereton, M. (2022). A support worker perspective on use of new technologies by people with intellectual disabilities. ACM Transactions on Accessible Computing, 15(3), 1-21. https://doi.org/10.1145/3523058
- Balbin, M. V., Corpus, A. N., Magtibay, G., Rivera, M. J., Santos, G. P. et Catamio, J. R. (2022). A literature analysis on the quality of life in adults with autism. Psychology and Education: A Multidisciplinary Journal, 4(8), 765-775.
- Bellefeuille, É. et Labbé, L. (2016). Inclusion sociale et déficience intellectuelle : où en est le Québec? Empanzambr, 104(4), 97-105. https://doi.org/10.3917/empa.104.0097
- Bériot, D. (2014). Petite synthèse. Dans D. Bériot (dir.), Manager par l’approche systémique (p. 61-72). Eyrolles.
- Bobillier-Chaumon, M. et Dubois, M. (2009). L’adoption des technologies en situation professionnelle : quelles articulations possibles entre acceptabilité et acceptation? Le travail humain, 72(4), 355-382. https://doi.org/10.3917/th.724.0355
- Bridges, S., Robinson, O., Stewart, E., Kwon, D. et Mutua, K. (2020). Augmented reality: Teaching daily living skills to adults with intellectual disabilities. Journal of Special Education Technology, 35(1), 3-14. https://doi.org/10.1177/0162643419836411
- Cankaya, S. et Kuzu, A. (2018). Effectiveness of mobile skill teaching software for parents of individuals with intellectual disability. International Education Studies, 11(3), 1-11.
- Clifford Simplican, S., Shivers, C., Chen, J. et Leader, G. (2018). “With a Touch of a Button”: Staff perceptions on integrating technology in an Irish service provider for people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 31(1), e130-e139. https://doi.org/10.1111/jar.12350
- Corbeil, R. (2009). Inventaire des habilités pour la vie en appartement (IHVA) : manuel et questionnaire. Groupe de recherche et d'étude en déficience du développement.
- Cornwall, A. et Jewkes, R. (1995). What is participatory research? Social Science & Medicine, 41(12), 1667-1676. https://doi.org/10.1016/0277-9536(95)00127-S
- Costenoble, A., Knoop, V., Vermeiren, S., Vella, R. A., Debain, A., Rossi, G., Bautmans, I., Verté, D., Gorus, E. et De Vriendt, P. (2021). A comprehensive overview of activities of daily living in existing frailty instruments: A systematic literature search. The Gerontologist, 61(3), e12-e22. https://doi.org/10.1093/geront/gnz147
- Couture, C., Bednarz, N. et Barry, S. (2007). Multiples regards sur la recherche participative. Une lecture transversale. Dans M. Anadón (dir.), La recherche participative (p. 207-221). Presses de l’Université du Québec.
- Cullen, J. M., Simmons‐Reed, E. A. et Weaver, L. (2017). Using 21st century video prompting technology to facilitate the independence of individuals with intellectual and developmental disabilities. Psychology in the Schools, 54(9), 965-978. https://doi.org/10.1002/pits.22056
- Deci, E. L. et Ryan, R. M. (2008). Self-determination theory: A macrotheory of human motivation, development, and health. Canadian Psychology, 49(3), 182-185. https://doi.org/10.1037/a0012801
- Desideri, L., Lancioni, G., Malavasi, M., Gherardini, A. et Cesario, L. (2021). Step-instruction technology to help people with intellectual and other disabilities perform multistep tasks: A literature review. Journal of Developmental and Physical Disabilities, 33(6), 857-886. https://doi.org/10.1007/s10882-020-09781-7
- Dessler, G. (2009). La gestion des organisations. Principes et tendances au XXIe siècle. Erpi.
- Dolbec, A. et Prud’homme, L. (2009). La recherche-action. Dans B. Gauthier (dir.), Recherche sociale : de la problématique à la collecte de données (p. 531-569). Presse de l’Université du Québec.
- Edwards, D. F., Wolf, T. J., Marks, T., Alter, S., Larkin, V., Padesky, B. L., Spiers, M., Al-Heizan, M. O. et Giles, G. M. (2019). Reliability and validity of a functional cognition screening tool to identify the need for occupational therapy. The American Journal of Occupational Therapy, 73(2). https://doi.org/10.5014/ajot.2019.028753
- Fortin, M.-F. et Gagnon, J. (2022). Fondements et étapes du processus de recherche : méthodes quantitatives et qualitatives (4e éd.). Chenelière éducation.
- Fougeyrollas, P. et Noreau, L. (2014). Mesure des Habitudes de vie : version (4.0) adolescents, adultes, ainés. Réseau international sur le Processus de production du handicap. (Document original publié en 2003)
- Frielink, N., Schuengel, C. et Embregts, P. J. (2018). Autonomy support, need satisfaction, and motivation for support among adults with intellectual disability: Testing a self-determination theory model. American Journal on Intellectual and Developmental Disabilities, 123(1), 33-49. https://doi.org/10.1352/1944-7558-123.1.33
- Gjermestad, A., Luteberget, L., Midjo, T. et Witsø, A. E. (2017). Everyday life of persons with intellectual disability living in residential settings: A systematic review of qualitative studies. Disability & Society, 32(2), 213-232. https://doi.org/10.1080/09687599.2017.1284649
- Golisz, K., Waldman-Levi, A., Swierat, R. P. et Toglia, J. (2018). Adults with intellectual disabilities: Case studies using everyday technology to support daily living skills. British Journal of Occupational Therapy, 81(9), 514-524. https://doi.org/10.1177/0308022618764781
- Goo, M., Maurer, A. L. et Wehmeyer, M. L. (2019). Systematic review of using portable smart devices to teach functional skills to students with intellectual disability. Education and Training in Autism and Developmental Disabilities, 54(1), 57-68.
- Hwang, Y. I. J., Foley, K. R., Elley, K., Brown, S., Joy-Leong, D., Li, X., Grove, R., Trollor, J., Pellicano, E. et Zheng, L. (2023). Experiences of performing daily activities in middle-aged and older autistic adults: A qualitative study. Journal of Autism and Developmental Disorders, 53(5), 2037-2049. https://doi.org/10.1007/s10803-022-05473-7
- Jamwal, R., Jarman, H. K., Roseingrave, E., Douglas, J. et Winkler, D. (2022). Smart home and communication technology for people with disability: A scoping review. Disability and Rehabilitation: Assistive Technology, 17(6), 624-644. https://doi.org/10.1080/17483107.2020.1818138
- Jekel, K., Damian, M., Wattmo, C., Hausner, L., Bullock, R., Connelly, P. J., Dubois, B., Eriksdotter, M., Ewers, M., Graessel, E., Kramberger, M. G., Law, E., Mecocci, P., Molinuevo, J. L., Nygard, L., Olde-Rikkert, M. G. M., Orgogozo, J.-M., Pasquier, F., Peres, K., … Frölich, L. (2015). Mild cognitive impairment and deficits in instrumental activities of daily living: A systematic review. Alzheimer's Research & Therapy, 7(1), 1-20. https://doi.org/10.1186/s13195-015-0099-0
- Kim, J. et Kimm, C. H. (2017). Functional technology for individuals with intellectual disabilities: Meta-analysis of mobile device-based interventions. The Journal of Special Education Apprenticeship, 6(1). https://doi.org/10.58729/2167-3454.1058
- Lachapelle, Y., Dupont, M.-È., Lussier-Desrochers, D., Therrien-Bélec, M., Pépin-Beauchesne, L. et Bilodeau, P. (2017). L’intervention technoclinique dans le secteur des services sociaux : considérations théoriques et applications cliniques. Dans D. Lussier-Desrochers (dir.), Intervention technoclinique dans le secteur des services sociaux : enjeux cliniques et organisationnels (p. 5-22). Presses de l’Université du Québec.
- Lara, M. H., Caro, K. et Martínez-García, A. I. (2023). Technology for supporting emotion regulation of individuals with developmental disabilities: A scoping review. Research in Developmental Disabilities, 136, 104467. https://doi.org/10.1016/j.ridd.2023.104467
- Lavoie, L., Marquis, D. et Laurin, P. (1996). La recherche-action. Théorie et pratique. Manuel d’autoformation. Presse de l’Université.
- Lawrason, S., Manley, Z., Lomness, A. et Hole, R. (2023). Remote support for individuals with intellectual disabilities living independently: A scoping review. International Journal of Developmental Disabilities, 1-18. https://doi.org/10.1080/20473869.2023.2280862
- Lawton, M. P. et Brody, E. M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179-86.
- Lincoln, Y. S. et Guba, E. G. (1985). Naturalistic inquiry. Sage Publications.
- Löppönen, L. (2021). The paradox of assisted self-determination and participation: A literature review on professionals facilitating the self-determination and participation of people with intellectual disabilities in group homes [Thèse de doctorat inédite]. Diaconia University.
- Lussier-Desrochers, D. (2016). Définir l’intervention technoclinique pour mieux comprendre sa portée. Revue du consortium national de recherche en intégration sociale, 8(1), 14.
- Lussier-Desrochers, D., Caouette, M. et Godin-Tremblay, V. (2015a). Étude sur les perceptions des acteurs-clés en lien avec l’implantation de l’innovation technologique au CRDITED du Bas-St-Laurent. Université du Québec à Trois-Rivières.
- Lussier-Desrochers, D., Caouette, M. et Godin-Tremblay, V. (2015b). Utilisation d’un modèle matriciel de gestion comme cadre d’analyse qualitative du déploiement de l’innovation dans le secteur des services sociaux. Recherches qualitatives, Hors-Série(17), 7-25.
- Lussier-Desrochers, D., Caouette, M. et Godin-Tremblay, V. (2017). Le déploiement de l’intervention technoclinique selon le modèle MAP2S. Dans D. Lussier-Desrochers (dir.), Intervention technoclinique dans le secteur des services sociaux : enjeux cliniques et organisationnels (p. 57-72). Presses de l’Université du Québec.
- Lussier-Desrochers, D., Lachapelle, Y. et Caouette, M. (2014). Challenges in the completion of daily living activities in residential settings. Journal on Developmental Disabilities, 20(1), 16-24.
- Mason, R. A., Davis, H. S., Boles, M. B. et Goodwyn, F. (2013). Efficacy of point-of-view video modeling: A meta-analysis. Remedial and Special Education, 34(6), 333-345. https://doi.org/10.1177/0741932513486298
- McShane, S. L. et Benabou, C. (2008). Comportement organisationnel. Comportements humains et organisations dans un environnement complexe. Chenelière éducation.
- Mellerson, S. D. (2021). Analytical review of using video technology to teach independent and daily living skills to students with intellectual disability. DADD Online Journal, 8(1), 58-73.
- Millán-Calenti, J. C., Tubío, J., Pita-Fernández, S., González-Abraldes, I., Lorenzo, T., Fernández-Arruty, T. et Maseda, A. (2010). Prevalence of functional disability in activities of daily living (ADL), instrumental activities of daily living (IADL) and associated factors, as predictors of morbidity and mortality. Archives of Gerontology and Geriatrics, 50(3), 306-310. https://doi.org/10.1016/j.archger.2009.04.017
- Ministère de la Santé et des Services sociaux. (2017). Des actions structurantes pour les personnes et leur famille. Plan d’action sur le trouble du spectre de l’autisme 2017-2022. http://publications.msss.gouv.qc.ca/msss/fichiers/2016/16-824-06W.pdf
- Ministère de la Santé et des Services sociaux. (2021). Pour une intégration des soins et des services pour les personnes ayant une déficience. https://publications.msss.gouv.qc.ca/msss/fichiers/2021/21-824-02W.pdf
- Mlinac, M. E. et Feng, M. C. (2016). Assessment of activities of daily living, self-care, and independence. Archives of Clinical Neuropsychology, 31(6), 506-516. https://doi.org/10.1093/arclin/acw049
- Morrissette, J. (2013). Recherche-action et recherche collaborative : quel rapport aux savoirs et à la production de savoirs? Nouvelles pratiques sociales, 25(2), 35-49. https://doi.org/10.7202/1020820ar
- Morse, K. P., Dukes, C., Brady, M. P., Frain, M. et Duffy, M. L. (2021). Using an iPad job coaching intervention to enhance food preparation skills for individuals with developmental disabilities. Journal of Vocational Rehabilitation, 55(3), 235-249.
- O’Brien, R. (1998). An overview of the methodological approach of action research. https://homepages.web.net/~robrien/papers/xx%20ar%20final.htm
- Office des personnes handicapées du Québec. (2022). Plan d’action à l’égard des personnes handicapées 2022-2023. https://cdn-contenu.quebec.ca/cdn-contenu/adm/org/ophq/Administration/Plans_d_action/Plan_action_egard_personnes_handicapees_2022-2023.pdf?1671134252
- Owuor, J. et Larkan, F. (2017). Assistive technology for an inclusive society for people with intellectual disability. Studies in Health Technology and Informatics, 242, 805-812. https://doi.org/10.3233/978-1-61499-798-6-805
- Panerai, S., Catania, V., Rundo, F. et Ferri, R. (2018). Remote home-based virtual training of functional living skills for adolescents and young adults with intellectual disability: Feasibility and preliminary results. Frontiers in Psychology, 9, 1730. https://doi.org/10.3389/fpsyg.2018.01730
- Park, J., Bouck, E. et Duenas, A. (2019). The effect of video modeling and video prompting interventions on individuals with intellectual disability: A systematic literature review. Journal of Special Education Technology, 34(1), 3-16. https://doi.org/10.1177/0162643418780464
- Park, J., Bouck, E. C. et Duenas, A. (2020). Using video modeling to teach social skills for employment to youth with intellectual disability. Career Development and Transition for Exceptional Individuals, 43(1), 40-52. https://doi.org/10.1177/2165143418810671
- Pérez-Fuster, P., Sevilla, J. et Herrera, G. (2019). Enhancing daily living skills in four adults with autism spectrum disorder through an embodied digital technology-mediated intervention. Research in Autism Spectrum Disorders, 58, 54-67. https://doi.org/10.1016/j.rasd.2018.08.006
- Randall, K. N., Ryan, J. B., Walters, S. M. et Stierle, J. N. (2021). Meal planner application efficacy for increasing meal planning independence in individuals with intellectual disability. Education and Training in Autism and Developmental Disabilities, 56(2), 225-239.
- Rasouli, O., Kvam, L., Husby, V. S., Røstad, M. et Witsø, A. E. (2023). Understanding the possibilities and limitations of assistive technology in health and welfare services for people with intellectual disabilities, staff perspectives. Disability and Rehabilitation: Assistive Technology, 18(7), 989-997. https://doi.org/10.1080/17483107.2021.1963856
- Réseau international sur le Processus de production du handicap. (2014). La mesure des habitudes de vie : guide d’utilisation. Version pour adolescents, adultes et ainés. https://ripph.qc.ca/wp-content/uploads/2017/10/3_Adulte_Guide-dutilisateur_francais.pdf
- Resta, E., Brunone, L., D’Amico, F. et Desideri, L. (2021). Evaluating a low-cost technology to enable people with intellectual disability or psychiatric disorders to initiate and perform functional daily activities. International Journal of Environmental Research and Public Health, 18(18), 9659. https://doi.org/10.3390/ijerph18189659
- Société canadienne d'hypothèques et de logement. (2022). L’importance du logement. https://www.cmhc-schl.gc.ca/lobservateur-du-logement/2022/importance-logement
- Spaniol, M. et Danielsson, H. (2022). A meta‐analysis of the executive function components inhibition, shifting, and attention in intellectual disabilities. Journal of Intellectual Disability Research, 66(1-2), 9-31. https://doi.org/10.1111/jir.12878
- Spriggs, A. D., Mims, P. J., van Dijk, W. et Knight, V. F. (2017). Examination of the evidence base for using visual activity schedules with students with intellectual disability. Journal of Special Education, 51(1), 14-26. https://doi.org/10.1177/0022466916658483
- Stierle, J., Ryan, J. B., Katsiyannis, A., Mims, P., Carlson, A. et Allen, A. (2023). Using smart phone technology to improve daily living skills for individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 36(5), 1169-1178. https://doi.org/10.1111/jar.13139
- Stierle, J., Ryan, J., Katsiyannis, A. et Mims, P. (2023). Using video prompting and modeling on mobile technology to teach daily living skills: A systematic review. Advances in Neurodevelopmental Disorders, 7, 491-501. https://doi.org/10.1007/s41252-022-00273-7
- Subach, R. et Sullivan, J. (2022). The Ram Chef program: Exploring perceptions of cooking independence and culinary abilities of young adults with disabilities and their caregivers. Disability and Health Journal, 15(2), 101258. https://doi.org/10.1016/j.dhjo.2021.101258
- Talke, K. et Heidenreich, S. (2014). How to overcome pro‐change bias: Incorporating passive and active innovation resistance in innovation decision models. Journal of Product Innovation Management, 31(5), 894-907. https://doi.org/10.1111/jpim.12130
- Talwar, S., Talwar, M., Kaur, P. et Dhir, A. (2020). Consumers’ resistance to digital innovations: A systematic review and framework development. Australasian Marketing Journal, 28(4), 286-299. https://doi.org/10.1016/j.ausmj.2020.06.014
- Thompson, J. R., Bryant, B. R., Schalock, R. L., Shogren, K. A., Tassé, M. J., Wehmeyer, M., Campbell, E. M., Craig, E. M., Hughes, C. et Rotholz, D. A. (2004). Supports intensity scale - Adult version (SIS-A). American Association on Intellectual and Developmental Disabilities.
- Torrado, J. C., Gomez, J. et Montoro, G. (2020). Hands-on experiences with assistive technologies for people with intellectual disabilities: Opportunities and challenges. IEEE Access, 8, 106408-106424. https://doi.org/10.1109/ACCESS.2020.3000095
- Waldman‐Levi, A., Golisz, K., Swierat, R. P. et Toglia, J. (2019). Scoping review: Interventions that promote functional performance for adolescents and adults with intellectual and developmental disabilities. Australian Occupational Therapy Journal, 66(4), 458-468. https://doi.org/10.1111/1440-1630.12577
- Zambri, I. M., Amin, A. S., Kamil, N. K. M., Akhir, N. M., Sutan, R., Khairuddin, K. F. et Abdullah, W. A. W. (2023). Factor affecting independent living of persons with intellectual disabilities: A systematic review. International Journal of Academic Research in Progressive Education and Development, 12(1), 623-644. https://doi.org/10.6007/IJARPED/v12-i1/15811
- Zgonec, S. et Bogataj, D. (2022). Assistive technologies supporting the independence of elderly adults with intellectual disability: Literature review and research agenda. IFAC-PapersOnLine, 55(39), 129-134. https://doi.org/10.1016/j.ifacol.2022.12.023
10.7202/1024051ar