Résumés
Résumé
La technologie de santé numérique s’intègre dans les soins de santé améliorant l’engagement des patients dans les décisions partagées, favorisant ainsi leur prise en charge et la qualité des soins. FirstHx développe des outils innovants dans cette optique, mais leur mise en oeuvre est complexe pour la population francophone dans un contexte majoritairement anglophone. Cette étude vise à valider culturellement cet outil et à évaluer la satisfaction des utilisateurs. Une méthodologie mixte séquentielle explicative est employée en trois phases : un sondage quantitatif pour tester la clarté des questions, des entretiens semi-dirigés pour explorer la traduction culturelle et la convivialité, et une validation par des experts via la méthode Delphi. L’outil validé optimisera les pratiques cliniques, normalisera la saisie des données d’anamnèse et ouvrira de nouvelles perspectives de recherche. Cette validation offrira à la population francophone un accès équitable à des outils numériques innovants, renforçant leur engagement dans leurs soins.
Mots-clés :
- numérisation de l’histoire médicale,
- soins de santé primaires,
- approche centrée sur le patient,
- méthode mixte,
- validation culturelle
Abstract
Digital health technology is being integrated into healthcare, improving patient engagement in shared decision-making, thereby promoting their care and the quality of care. FirstHx develops innovative tools with this goal in mind, but their implementation is complex for the Francophone population in a predominantly English-speaking context. This study aims to culturally validate this tool and assess user satisfaction. A sequential explanatory mixed-method approach is used in three phases: a quantitative survey to test question clarity, semi-structured interviews to explore cultural translation and user-friendliness, and validation by experts using the Delphi method. The validated tool will optimize clinical practices, standardize the collection of medical history data, and open new research opportunities. This validation will provide the Francophone population with equitable access to innovative digital tools, strengthening their engagement in their healthcare.
Keywords:
- digitization of medical history,
- primary healthcare,
- patient-centered approach,
- mixed method,
- cultural validation
Parties annexes
Bibliographie
- Abernethy, A. P., Herndon, J. E. II, Wheeler, J. L., Patwardhan, M., Shaw, H., Lyerly, H. K. et Weinfurt K. (2008). Improving health care efficiency and quality using tablet personal computers to collect research-quality, patient reported data. Health Services Research, 43(6), 1975-1991. https://doi.org/10.1111/j.1475-6773.2008.00887.x
- Agence de santé publique du Canada. (2020). Chronic Diseases. Retrieved from: Prevalence of Chronic Diseases and Risk Factors among Canadians aged 65 years and older. https://www.canada.ca/en/public-health/services/chronic-diseases.html
- Akins, R. B., Tolson, H. et Cole, B. R. (2005). Stability of response characteristics of a Delphi panel: application of bootstrap data expansion. BMC medical research methodology, 5(37). https://doi.org/10.1186/1471-2288-5-37
- Bachman, J. (2007). Improving care with an automated patient history. Family Practice Management, 14(7), 39-43. https://www.aafp.org/pubs/fpm/issues/2007/0700/p39.pdf
- Bachman, J. W. (2003). The patient-computer interview: A neglected tool that can aid the clinician. Mayo Clinic Proceedings, 78(1), 67-78. https://www.mayoclinicproceedings.org/article/S0025-6196(11)61832-6/fulltext
- Barsky. (2002). Forgetting, fabricating, and telescoping: The instability of the medical history. Archives of Internal Medicine, 162(9), 981-984. https://doi.org/10.1001/archinte.162.9.981
- Booto Ekionea, J.-P., Bernard, P. et Plaisent, M. (2011). Consensus par la méthode Delphi sur les concepts clés des capacités organisationnelles spécifiques de la gestion des connaissances. Recherches qualitatives, 29(3), 168-192. https://doi.org/10.7202/1085878ar
- Breton, M., Sullivan, E. E., Deville-Stoetzel, N., McKinstry, D., DePuccio, M., Sriharan, A., Deslauriers, V., Dong, A. et McAlearney, A. S. (2021). Telehealth challenges during COVID-19 as reported by primary healthcare physicians in Quebec and Massachusetts. BMC family practice, 22(192). https://doi.org/10.1186/s12875-021-01543-4
- Chowdhury, S., Mok, D. et Leenen, L. (2021). Transformation of health care and the new model of care in Saudi Arabia: Kingdom’s Vision 2030. Journal of Medical Life, 14(3), 347-354. https://doi.org/10.25122/jml-2021-0070
- Creswell, J. W. et Plano Clark, V. L. (2018). Designing and conducting mixed methods research. Sage publications.
- Dale, O. et Hagen, B. K. (2007). Despite technical problems personal digital assistants outperform pen and paper when collecting patient diary data. Journal of Clinical Epidemiology, 60(1), 8-17. https://doi.org/10.1016/j.jclinepi.2006.04.005
- Feigelson, M. et Dwight, S. (2012). Can asking questions by computer improve the candidness of responding? A meta-analytic perspective. Consulting Psychology Journal: Practice and Research, 52(4), 248-255. https://psycnet.apa.org/doi/10.1037/1061-4087.52.4.248
- Fortin, M.-F. et Gagnon, J. (2022). Fondements et étapes du processus de recherche. Chenelière Éducation.
- Garritty, C. et El Emam, K. (2006). Who’s using PDAs? Estimates of PDA use by health care providers: A systematic review of surveys. Journal of Medical Internet Research, 8(2), e510. https://doi.org/10.2196/jmir.8.2.e7
- Gibelli, F., Bailo, P., Pesel, G. et Ricci, G. (2024). Preserving patient stories: Bioethical and legal implications related to the shift from traditional to digital anamnesis. Clinics and Practice, 14(4), 1196-1213. https://doi.org/10.3390/clinpract14040095
- Gouvernement du Canada. (2018). Rapport du Système canadien de surveillance des maladies chroniques : Les maladies du coeur au Canada, A.d.l.s.p.d. https://www.who.int/fr/news-room/fact-sheets/detail/primary-health-care
- Gouvernement du Canada. (2022a). Facilitation de la recherche. https://cihr-irsc.gc.ca/f/51037.html
- Gouvernement du Canada. (2022b). Énoncé de politique des trois conseils : éthique de la recherche avec des êtres humains. EPTC 2 2022. https://ethics.gc.ca/fra/documents/tcps2-2022-fr.pdf
- Haller, G., Haller, D. M., Courvoisier, D. S. et Lovis, C. (2009). Handheld vs. laptop computers for electronic data collection in clinical research: A crossover randomized trial. Journal of the American Medical Informatics Association, 16(5), 651-659. https://doi.org/10.1197/jamia.M3041
- Hess, R., Santucci, A., McTigue, K., Fischer, G., Kapoor, W. (2008). Patient difficulty using tablet computers to screen in primary care. Journal of General Internal Medicine, 23(4), 476-480. https://doi.org/10.1007/s11606-007-0500-1
- Instituts de recherche en santé au Canada. (2014) Stratégie de recherche axée sur le patient – Cadre d’engagement des patients. https://www.cihr-irsc.gc.ca/f/documents/spor_framework-fr.pdf
- James, T. L., Feldman, J. et Mehta, S. D. (2006). Physician variability in history taking when evaluating patients presenting with chest pain in the emergency department. Academic Emergency Medicine, 13(2), 147-152. https://doi.org/10.1197/j.aem.2005.08.007
- Jimenez, G., Tyagi, S., Osman, T., Spinazze, P., van der Kleij, R., Chavannes, N. H. et Car, J. (2020). Improving the primary care consultation for diabetes and depression through digital medical interview assistant systems: Narrative review. Journal of medical Internet research, 22(8), e18109. https://doi.org/10.2196/18109
- Lane, S. J., Heddle, N. M., Arnold, E. et Walker, I. (2006). A review of randomized controlled trials comparing the effectiveness of hand-held computers with paper methods for data collection. BMC Medical Informatics and Decision Making, 6(23), 1-10. https://doi.org/10.1186/1472-6947-6-23
- Locke, E. S., Kowaloff, H. B., Hoff, R. G., Safran, C., Popovsky, M. A., Cotton, D. J., Finkelstein, D., Page, P. L. et Slack, W. V. (1992). Computer-based interview for screening blood donors for risk of HIV transmission. JAMA, 268(10), 13015. https://doi.org/10.1001/jama.1992.03490100099034
- Organisation mondiale de la santé (2023). Soins de santé primaires. https://www.who.int/fr/news-room/fact-sheets/detail/primary-health-care
- Pappas, Y., Anandan, C., Liu, J., Car, J., Sheikh, A.,et Majeed, A. (2011). Computer-assisted history-taking systems (CAHTS) in health care: Benefits, risks and potential for further development. Informatics in Primary Care, 19(3), 155-160. https://access.portico.org/stable?au=phw1p057fdw
- Perlis, T. E., Des Jarlais, D. C., Friedman, S. R., Arasteh, K. et Turner, C. F. (2004). Audio-computerized self-interviewing versus face-to-face interviewing for research data collection at drug abuse treatment programs. Addiction, 99(7), 885-896. https://doi.org/10.1111/j.1360-0443.2004.00740.x
- Pomey, M. P., Ghadiri, D. P., Karazivan, P., Fernandez, N., & Clavel, N. (2015). Patients as partners: a qualitative study of patients' engagement in their health care. PloS one, 10(4), e0122499. https://doi.org/10.1371/journal.pone.0122499
- Redelmeier, D. A., Schull, M. J., Hux, J. E., Tu, J. V., Ferris, L. E. (2001). Problems for clinical judgment: 1. Eliciting an insightful history of present illness. Canadian Medical Association Journal, 164(5), 647-651. https://pubmed.ncbi.nlm.nih.gov/11258213/
- Robert, G. (2013). Participatory action research: using experience-based co-design to improve the quality of healthcare services. Dans S. Ziebland, A. Coutler, J. Calabrese et L. Locock (dir.), Understanding and Using Health Experiences: Improving Patient Care (p. 138-149). Oxford University Press.
- Shachak, A. et Reis, S. (2009, August). The impact of electronic medical records on patient-doctor communication during consultation: A narrative literature review. Journal of Evaluation in Clinical Practice, 15(4), 641-649. https://doi.org/10.1111/j.1365-2753.2008.01065.x
- Steele Gray, C., Khan, A. I., Kuluski, K., McKillop, I., Sharpe, S., Bierman, A. S., Lyons, R. F. et Cott, C. (2016). Improving patient experience and primary care quality for patients with complex chronic disease using the electronic patient-reported outcomes tool: Adopting qualitative methods into a user-centered design approach. JMIR research protocols, 5(1), e28. https://doi.org/10.2196/resprot.5204
- Thorne, S. (2016). Interpretive description: qualitative research for applied practice (2e éd.). Routledge.
- Weiner, G. S., Horton, C. L., Green, C. T. et Butler, F. S. (2015). Feasibility of tablet computer screening for opioid abuse in the emergency department. Western Journal of Emergency Medicine, 16(1), 18-23. https://doi.org/10.5811/westjem.2014.11.23316
- Wensing, M. et Kersnik, J. (2012). Improving the quality of care for patients with chronic diseases: what research and education in family medicine can contribute. European Journal of General Practice, 18(4), 238-241. https://doi.org/10.3109/13814788.2012.742059
- Zakim, D., Braun, N., Fritz, P., & Alscher, M. D. (2008, November 05). Underutilization of information and knowledge in everyday medical practice: Evaluation of a computer-based solution. BMC Medical Informatics and Decision Making, 8(50). https://doi.org/10.1186/1472-6947-8-50
- Zakim D. (2016). Development and significance of automated history-taking software for clinical medicine, clinical research and basic medical science. Journal of Internal Medecine, 280(3), 287-299. https://doi.org/10.1111/joim.12509
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