Résumés
Résumé
Cet article décrit les stratégies des parents à la maison pour répondre aux besoins sensoriels de leur enfant dans le cadre de leurs tâches liées au travail domestique et de soin. Six parents d’enfants autistes ayant une déficience intellectuelle moyenne à sévère scolarisés en école spécialisée ont participé à un entretien. Les parents décrivent des actions faites avec/par l’enfant et sur l’environnement, mais peu d’utilisation de matériels spécialisés coûteux. Ces actions sont individualisées et imbriquées dans les activités et routines familiales, tout en étant flexibles et en considérant la sécurité de l’enfant. Cet article permet de mieux comprendre les considérations entourant les besoins sensoriels dans le travail domestique et de soin prodigué et propose des pistes pour la classe.
Mots-clés :
- Adaptation scolaire,
- autisme,
- besoins sensoriels,
- déficience intellectuelle,
- stratégies sensorielles,
- travail domestique et de soin parental
Abstract
This article describes parents' strategies at home for meeting their child's sensory needs as part of their domestic and care work tasks. Six parents of autistic children with moderate to severe intellectual disability attending special schools participated in an interview. Results show that most of strategies are actions taken by/with the children and on the environment, while specialized equipment is less used. Parents choose low-cost strategies readily available within home settings. Their strategies are individualized to the child’s needs and are included within activities and family routines. Flexibility and children security issues are considered by parents. This article provides a better understanding of how sensory needs affect parental care and provides ideas for classroom interventions.
Keywords:
- autism,
- intellectual disability,
- parental care,
- sensory needs,
- sensory strategies,
- special education settings
Parties annexes
Bibliographie
- American Psychiatric Association. (2013). DSM-5: Diagnostic and statistical manual of mental disorders (5e éd.).
- Ashburner, J. K., Rodger, S. A., Ziviani, J. M. et Hinder, E. A. (2014). Optimizing participation of children with autism spectrum disorder experiencing sensory challenges: A clinical reasoning framework. Canadian Journal of Occupational Therapy, 81(1), 29‑38. https://doi.org/10.1177/0008417413520440
- Bardin, L. (2013). L’analyse de contenu (2e éd.). Presses universitaires de France.
- Benson, J. D., Donoso Brown, E. V., Blough, A. et Smitsky, D. (2020). The Effect of sensorimotor strategies on attention and in-seat behavior in preschoolers with autism spectrum disorder: A pilot study. Journal of Occupational Therapy, Schools, & Early Intervention, 13(3), 236‑249.
- Bodison, S. C. et Parham, L. D. (2018). Specific sensory techniques and sensory environmental modifications for children and youth with sensory integration difficulties: A systematic review. The American Journal of Occupational Therapy, 72(1), 7201190040 1-11. https://doi.org/10.5014/ajot.2018.029413
- Boursange, S. et Gargiulo, M. (2022). Mise au point sur le concept de surcharge parentale. Contraste, 56(2), 11‑34. https://doi.org/10.3917/cont.056.0011
- Braun, V. et Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77‑101.
- Butera, C., Ring, P., Sideris, J., Jayashankar, A., Kilroy, E., Harrison, L., Cermak, S. et Aziz-Zadeh, L. (2020). Impact of sensory processing on school performance outcomes in high functioning individuals with autism spectrum disorder. Mind, Brain and Education, 14(3), 243‑254.
- Case-Smith, J., Weaver, W. et Fristad, M. A. (2015). A systematic review of sensory processing interventions for children with autism spectrum disorders. Autism: The International Journal of Research and Practice, 19(2), 133‑148. https://doi.org/10.1177/1362361313517762
- Chatenoud, C., Odier-Guedj, D., Camard, S., Rivard, M., Aldersey, H. et Turnbull, A. (2019). Advocacy de parents d’enfants ayant un trouble du développement et mécanismes d’exclusion préscolaires et scolaires : étude de portée. Revue des sciences de l’éducation de McGill, 54(2), 388‑406. https://doi.org/10.7202/1065664ar
- Chrétien-Vincent, M., Grandisson, M., Desmarais, C. et Milot, É. (2023). Outcomes of an intervention to build early childhood educators’ capacity to promote the participation of autistic children with reactions to sensory stimulations. Journal of Occupational Therapy, Schools, & Early Intervention, 1‑23. https://doi.org/10.1080/19411243.2023.2203419
- Chrétien-Vincent, M., Tétreault, S. et Couture, M. (2019). Programme sensorimoteur, intégration scolaire et enfants avec un Trouble du Spectre Autistique. Revue francophone de recherche en ergothérapie, 5(1), 19‑39. https://doi.org/10.13096/rfre.v5n1.65
- DeBoth, K. K. (2016). Sensory-based subtyping in children with autism spectrum disorder. Virginia Commonwealth University.
- Des Rivières-Pigeon, C. et Courcy, I. (2017). «Il faut toujours être là.» Analyse du travail parental en contexte d’autisme. Enfances Familles Générations. Revue interdisciplinaire sur la famille contemporaine, 28.
- Dionne, C., Chatenoud, C. et McKinnon, S. (2015). Familles de jeunes enfants présentant des incapacités intellectuelles : étude des besoins et du sentiment d’appropriation du pouvoir. Enfance en difficulté, 4, 5‑26. https://doi.org/10.7202/1036836ar
- Dynia, J. M., Walton, K. M., Sagester, G. M., Schmidt, E. K. et Tanner, K. J. (2023). Addressing sensory needs for children with autism spectrum disorder in the classroom. Intervention in School and Clinic, 58(4), 257‑263. https://doi.org/10.1177/10534512221093786
- Fortier, M.-P., Noël, I., Ramel, S. et Bergeron, G. (2018). Intégration scolaire, éducation inclusive et représentations des enseignants. De la formation initiale à la communauté éducative. Revue des sciences de l’éducation, 44(1), 12‑39. https://doi.org/10.7202/1054156ar
- Fougeyrollas, P. (2010). La funambule, le fil et la toile. Transformations réciproques du sens du handicap. Presses Université Laval.
- Grandisson, M., Rajotte, É., Godin, J., Chretien-Vincent, M., Milot, É. et Desmarais, C. (2020). Autism spectrum disorder: How can occupational therapists support schools? Canadian Journal of Occupational Therapy, 87(1), 30‑41. https://doi.org/10.1177/0008417419838904
- Lachapelle, Y. et Wehmeyer, M. (2003). L’autodétermination. Dans M. J. Tassé et D. Morin (dir.), La déficience intellectuelle (p. 203‑214). Chenelière.
- Mills, C., Chapparo, C. et Hinitt, J. (2016). The impact of an in-class sensory activity schedule on task performance of children with autism and intellectual disability: A pilot study. British Journal of Occupational Therapy, 79(9), 530‑539. https://doi.org/10.1177/0308022616639989
- Ministère de l’Éducation et de l’Enseignement supérieur. (2019). Programme éducatif CAPS-I - Compétences axées sur la participation sociale. http://www.education.gouv.qc.ca/fileadmin/site_web/documents/dpse/adaptation_serv_compl/Programme-educatif-CAPS.PDF
- Odom, S. L. (2019). Peer-based interventions for children and youth with autism spectrum disorder: History and effects. School Psychology Review, 48(2), 170‑176.
- Ouellet, B., Carreau, E., Dion, V., Rouat, A., Tremblay, E. et Voisin, J. I. (2021). Efficacy of sensory interventions on school participation of children with sensory disorders: A systematic review. American Journal of Lifestyle Medicine, 15(1), 75‑83. https://doi.org/10.1177/1559827618784274
- Padmanabha, H., Singhi, P., Sahu, J. K. et Malhi, P. (2019). Home-based sensory interventions in children with autism spectrum disorder: A randomized controlled trial. The Indian Journal of Pediatrics, 86, 18‑25. https://doi.org/10.1007/s12098-018-2747-4
- Peña, M., Ng, Y., Ripat, J. et Anagnostou, E. (2021). Brief report: Parent perspectives on sensory-based interventions for children with autism spectrum disorder. Journal of autism and developmental disorders, 51(6), 2109‑2114. https://doi.org/10.1007/s10803-020-04644-8
- Picard, I., Morin, D. et Rutt, K. (2020). Enquête sur les services reçus et les besoins de soutien de parents de personnes présentant une déficience intellectuelle au Québec. Revue francophone de la déficience intellectuelle, 30, 29‑44. https://doi.org/10.7202/1075382ar
- Polatajko, H. J. et Cantin, N. (2010). Exploring the effectiveness of occupational therapy interventions, other than the sensory integration approach, with children and adolescents experiencing difficulty processing and integrating sensory information. The American Journal of Occupational Therapy, 64(3), 415‑429. https://doi.org/10.5014/ajot.2010.09072
- Reynolds, S., Glennon, T. J., Ausderau, K., Bendixen, R. M., Kuhaneck, H. M., Pfeiffer, B., Watling, R., Wilkinson, K. et Bodison, S. C. (2017). Using a multifaceted approach to working with children who have differences in sensory processing and integration. The American Journal of Occupational Therapy, 71(2), 7102360010 1-10. https://doi.org/10.5014/ajot.2017.019281
- Saggers, B., Tones, M., Dunne, J., Trembath, D., Bruck, S., Webster, A., Klug, D. et Wang, S. (2019). Promoting a collective voice from parents, educators and allied health professionals on the educational needs of students on the autism spectrum. Journal of Autism and Developmental Disorders, 49, 3845‑3865. https://doi.org/10.1007/s10803-019-04097-8
- Schaaf, R. C., Toth-Cohen, S., Johnson, S. L., Outten, G. et Benevides, T. W. (2011). The everyday routines of families of children with autism: Examining the impact of sensory processing difficulties on the family. autism, 15(3), 373‑389. https://doi.org/10.1177/1362361310386505
- Stanciu, R. et Delvenne, V. (2016). Traitement de l’information sensorielle dans les troubles du spectre autistique. Neuropsychiatrie de l’Enfance et de l’Adolescence, 64(3), 155‑162. http://dx.doi.org/10.1016/j.neurenf.2016.02.002
- Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., Szendrey, S., McIntyre, N. S., Yücesoy-Özkan, S. et Savage, M. N. (2020). Evidence-based practices for children, youth, and young adults with autism. The University of North Carolina, Frank Porter Graham Child Development Institute, National Clearinghouse on Autism Evidence and Practice Review Team.
- Turnbull, A., Turnbull, H. R., Erwin, E. J. et Shogren, K. A. (2015). Families, professionals, and exceptionality: Positive outcomes through partnerships and trust. Pearson.
- Van Rie, G. L. et Heflin, L. J. (2009). The effect of sensory activities on correct responding for children with autism spectrum disorders. Research in Autism Spectrum Disorders, 3(3), 783‑796. https://doi.org/10.1016/j.rasd.2009.03.001
- Verbi Software GmbH. (2022). MaxQDA 2022 [logiciel]. https://www.maxqda.com/fr
- Weitlauf, A. S., Sathe, N., McPheeters, M. L. et Warren, Z. E. (2017). Interventions targeting sensory challenges in autism spectrum disorder: A systematic review. Pediatrics, 139(6). https://doi.org/10.1542/peds.2017-0347
10.7202/1065664ar