Résumés
Abstract
Aboriginal adults with Fetal Alcohol Spectrum Disorder (FASD) face multiple barriers to services that did not exist in their childhood, yet they still cope with the same FASD-related cognitive issues that they experienced in childhood. Considerable effort is directed to research on children with FASD, but little research on adults with FASD. Furthermore, research on the population of Canada that is generalized to Aboriginal people is neither effective nor ethical. This literature review focuses on Aboriginal adults with FASD, specifically looking at criminal recidivism rates, the stigma attached to an FASD diagnosis, lack of support services, and the ongoing effects of intergenerational trauma. Future qualitative research is suggested to focus on adulthood and aging with FASD, and on helpful interventions.
Keywords:
- fetal alcohol spectrum disorder (FASD),
- Aboriginal adults,
- resiliency
Parties annexes
Bibliography
- Bell, E., Andrew, G., Di Pietro, N., Chudley, A. E., Reynolds, J. N., & Racine, E. (2016). It’s a shame! Stigma against fetal alcohol spectrum disorder: Examining the ethical implications for public health practices and policies. Public Health Ethics, 9(1), 65-77. http://dx.doi.org/10.1093/phe/phv012
- Blue, A., Darou, W., Ruano, C. (2010). Engaging the elder within: Bridging and honouring the cultural spaces in counselling with First Nations. In N. Arthur & S. Collins (Eds.), Culture-Infused Counselling (2nd Ed.). (pp. 259-284). Calgary, AB: Counselling Concepts.
- Bracken, D. C. (2008). Canada’s Aboriginal people, fetal alcohol syndrome and the criminal justice system. British Journal of Community Justice, 6(3), 21-33. Retrieved from http://www.cjp.org.uk
- Brown, J., Mitchell, M., Wartnik, A., & Russell, A. (2015). FASD and the courts: A reference for legal professionals. Bench & Bar of Minnesota, 24-28. Retrieved from http://mnbenchbar.com/
- Burnside, L. & Fuchs, D. (2013). Bound by the clock: The experiences of youth with FASD transitioning to adulthood from child welfare care. First Peoples Child & Family Review, 8(1), 41-62. Retrieved from http://journals.sfu.ca/fpcfr/index.php/FPCFR/article/view/200
- Canadian Broadcasting Corporation. (2009). Unique project helps keep FASD teens out of jail. Retrieved from www.cbc.ca/news/canada/edmonton/unique-project-helps-keep-fasd-teens-out-of-jail-1.827083
- Canadian Institutes of Health Research., Natural Sciences and Engineering Research Council of Canada., Social Sciences and Humanities Research Council of Canada. (2014). Tri-council policy statement: Ethical conduct for research involving humans. Ottawa: Secretariat on Responsible Conduct of Research.
- Eni, R. & Senecal, S. (2009). Pathways to fetal alcohol spectrum disorder in Aboriginal communities. Canadian Diversity, 7(3), 85-92. Retrieved from http://www.acs-aec.ca/
- Knorr, L. & McIntyre, L. J. (2016). Resilience in the face of adversity: Stories from adults with fetal alcohol spectrum disorders. Exceptionality Education International, 26(1), 53-75. Retrieved from http://ir.lib.uwo.ca/eei/vol26/iss1/4
- Lynch, M. E., Kable, J. A., & Coles, C. D. (2015). Prenatal alcohol exposure, adaptive function, and entry into adult roles in a prospective study of young adults. NeurotoxicologyandTeratology,51, 52-60. http://dx.doi.org/10.1016/j.ntt.2015.07.008
- Macdonald, N. & Campbell, M. (2017). Lost and broken. MacLean’s, 130(9), 24-29.
- Masotti, P., Longstaffe, S., Gammon, H., Isbister, J., Maxwell, B., & Hanlon-Dearman, A. (2015). Integrating care for individuals with FASD: Results from a multi-stakeholder symposium. BMC Health Services Research, 15, 457-469. http://dx.doi.org/10.1186/s12913-015-1113-8
- Miller, H. A. (2013). Two-way impact with FASD treatment. Alberta Sweetgrass, 20(5), 12. Retrieved from http://www.ammsa.com/sweetgrass/index.asp
- Milward, D. (2014). The sentencing of Aboriginal accused with FASD: A search for different pathways. UBC Law Review, 47(3), 1025-1056. Retrieved from http://ubclawreview.ca/issues/volume-473/
- Nash, A., & Davies, L. (2017). Fetal alcohol spectrum disorders: What pediatric providers need to know. Journal of Pediatric Health Care, 31(5), 594-606. http://dx.doi.org/10.1016/j.pedhc.2017.04.002
- Pei, J., Baugh, L., Andrew, G., & Rasmussen, C. (2017). Intervention recommendations and subsequent access to services following clinical assessment for fetal alcohol spectrum disorders. Research in Developmental Disabilities, 60, 176-186. http://dx.doi.org/10.1016/j.ridd.2016.11.007
- Pei, J., Leung, W. S. W., Jampolsky, F., & Alsbury, B. (2016). Experiences in the Canadian criminal justice system for individuals with fetal alcohol spectrum disorders: Double jeopardy? Canadian Journal of Criminology & Criminal Justice, 58(1), 56-86. http://dx.doi.org/10.3138/cjccj.2014.E25
- Poole, N., Schmidt, R. A., Green, C., & Hemsing, N. (2016). Prevention of fetal alcohol spectrum disorder: Current Canadian efforts and analysis of gaps. Substance Abuse: Research and Treatment, 10(S1), 1-11. http://dx.doi.org/10.4137/SART.S34545
- Popova, S., Lange, S., Burd, L., & Rehm, J. (2015). Cost attributable to fetal alcohol spectrum disorder in the Canadian correctional system. International Journal of Law and Psychiatry, 41, 76-81. http://dx.doi.org/10.1016/j.ijlp.2015.03.010
- Popova, S., Lange, S., Probst, C., Parunashvili, N., & Rehm, J. (2017). Prevalence of alcohol consumption during pregnancy and fetal alcohol spectrum disorders among the general and Aboriginal populations in Canada and the United States. European Journal of Medical Genetics, 60, 32-48. http://dx.doi.org/10.1016/j.ejmg.2016.09.010
- Rutman, D., Hubberstey, C., Poole, N., Hume, S., & Van Bibber, M. (2016). Developing and using a common framework to evaluate FASD programs: Results of a three-year Canadian project. International Journal of Mental Health Addiction, 14, 472-482. http://dx.doi.org/10.1007/s11469-015-9597-3
- Shankar, I. (2015). The making of a medical disorder: Tracing the emergence of fetal alcohol spectrum disorder in Alberta. Social Work in Public Health, 30, 38-50. http://dx.doi.org/10.1080/19371918.2014.938930
- Tait, C. (2009). Disruptions in nature, disruptions in society: Aboriginal Peoples of Canada and the “making” of fetal alcohol syndrome. In L. J. Kirmayer & G. G. Valaskakis (Eds.), Healing traditions: The mental health of Aboriginal People in Canada (pp. 196-220). Vancouver, Canada: UBC Press.
- Totten, M. & The Native Women’s Association of Canada. (2010). Investigating the linkages between FASD, gangs, sexual exploitation and woman abuse in the Canadian Aboriginal population: A preliminary study. First Peoples Child & Family Review, 5(2), 9-22. Retrieved from http://journals.sfu.ca/fpcfr/index.php/FPCFR/article/view/89
- Tremblay, M., Pei, J., Plesuk, D., Muchortow, A., Mihai, P., & Jordao, R. (2017). Development of a clinical practice model for serving clients with fetal alcohol spectrum disorder. International Journal of Advanced Counselling, 39, 82-97. http://dx.doi.org/10.1007/s10447-017-9284-0
- Truth and Reconciliation Commission of Canada. (2015). Honouring the truth, reconciling for the future: Summary of the final report of the Truth and Reconciliation Commission of Canada. Winnipeg, MB: Truth and Reconciliation Commission of Canada.
- Wheeler, J. A., Kenney, K. A., & Temple, V. (2013). Fetal alcohol spectrum disorder: Exploratory investigation of services and interventions for adults. Journal on Developmental Disabilities, 19(3), 62-75. Retrieved from http://www.oadd.org
- Wilson, A. (2013). A social work student’s developing understanding of fetal alcohol spectrum disorder from medical and social perspectives and implications for practice. First Peoples Child & Family Review, 8(1), 26-40. Retrieved from http://journals.sfu.ca/fpcfr/index.php/FPCFR/article/view/199
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