Abstracts
Résumé
Cet article présente la première phase d’une recherche-action visant à soutenir les personnes conjointes aidantes dans le maintien de leur affectivité et de leur réciprocité avec leur partenaire atteint.e de la maladie d’Alzheimer par la conception d’une trousse d’activités sensorielles. L’objectif était double : identifier les besoins d’expression affective et de réciprocité des personnes conjointes aidantes et mieux comprendre l’histoire sensorielle de ces couples à travers leurs grandes réalisations. Par des entrevues individuelles, 15 personnes conjointes aidantes ont été interrogées. Les résultats montrent les défis du maintien de l’affectivité et de la réciprocité et détaillent les sens stimulés dans les réalisations identifiées.
Mots-clés :
- expression affective,
- réciprocité,
- maladie d’Alzheimer,
- proche aidant,
- conjoint,
- relation amoureuse
Abstract
This article presents the first phase of an action-research project aimed at supporting caregiving spouses in maintaining their affectivity and reciprocity with their partner suffering from Alzheimer's disease, through the design of a sensory activity kit. The aim was twofold: to identify the needs of caregivers for affective expression and reciprocity, and to better understand the sensory history of these couples through their major achievements. Through individual interviews, 15 caregiving spouses were interviewed. The results show the challenges of maintaining affectivity and reciprocity, and detail the senses stimulated in the achievements identified.
Keywords:
- affectivity,
- reciprocity,
- Alzheimer’s disease,
- caregiver,
- spouse,
- romantic relationship
Appendices
Bibliographie
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