Abstracts
Résumé
Le présent article vise à synthétiser et à mettre à jour une recension sur l’intervention de la crise en DI-TSA qui a été publié en 2015. Après un rappel du contexte, le concept de crise comportementale est discuté et une formulation théorique et clinique de ce phénomène est proposée à partir de l’état des connaissances actuelles. Puis, en s’appuyant sur l’ensemble de la documentation recueillie, un modèle d’interventions préventives sur les situations de crise en DI-TSA regroupe de façon succincte les meilleures pratiques recensées dans le domaine. En terminant, les limites de la démarche sont évoquées brièvement et des pistes de recherche sont mentionnées.
Mots-clés :
- crise comportementale,
- déficience intellectuelle,
- interventions préventives,
- recension des écrits
Abstract
This article aims to synthesize and update a review on the phenomenon of the crisis in the IDD-ASD which was published in 2015. After a reminder of the context, the concept of Behavioral crisis (BC) is discussed and theoretical and clinical formulations are proposed from the current state of knowledge. Then, drawing on all the documentation collected, a model of preventive interventions on BC situations in IDD-ASD summarizes the best practices identified in the field. In conclusion, the limitations of the proposal are briefly mentioned and some research tracks are mentioned.
Keywords:
- behavioral crisis,
- intellectual disability,
- preventive interventions,
- literature review
Appendices
Bibliographie
- Allen, M. H., Forster, P., Zealberg, J. et Currier, G. (2002). Report and recommendations regarding psychiatric emergency and crisis services: a review and model program descriptions. Récupéré de http://citeseerx.ist.psu.edu/viewdoc/download?doi=10.1.1.473.167&rep=rep1&type=pdf
- APBA - Association of Professional Behavior Analysts (2010). Position statement on the use of restraint and seclusion as interventions for dangerous and destructive behaviors: supporting research and practice guidelines. Récupéré de https://cdn.ymaws.com/www.apbahome.net/resource/collection/1FDDBDD2-5CAF-4B2A-AB3F-DAE5E72111BF/Support_for_APBA_Pos_Stmt_-_Restraint_&_Seclusion.pdf
- Baker, D. J., Craven, K., Albin, R. W. et Wieseler, N. A. (2002). Training and technical assistance strategies to prevent and respond to behavior-related crises. Dans R. H. Hanson, N. A. Wieseler, K. C. Lakin et D. L. Braddock (dir.), Crisis: prevention and response in the community (p.165-197). Washington, DC : American Association on Mental Retardation.
- Barkley, R. A. (2012). Executive functions: What they are, how they work, and why they evolved. New York, NY : The Guilford Press.
- Barry-Walsh, J., Daffern, M., Duncan, S. et Ogloff, J. (2009). The prediction of imminent aggression in patients with mental illness and/or intellectual disability using the Dynamic Appraisal of Situational Aggression instrument. Australian Psychiatry, 17(6), 493-496.
- Bering, S. (2010). Facing the commissioning challenge: responding effectively to people whose behaviour is challenging. Advances in Mental Health and Intellectual Disabilities, 4(2), 4-12.
- Bigras, M., Hamel, G., Robin, G., Beaulieu, Y. et Sabourin, G. (2016). Intervention de crise auprès de personnes ayant une déficience intellectuelle avec ou sans troubles envahissants du développement : une revue critique des écrits en consultation avec les parties prenantes-Résumé exécutif. CIUSSS-MCQ.
- Bradshaw, J. (2011). Communication and challenging behaviour. Dans S. Hardy et T. Joyce (dir.), Challenging behaviour and people with learning disabilities: a handbook (p. 49-56). Brighton, Angleterre : Pavilion Publishing Ltd.
- Carver, J. et collaborateurs (2010). Dual diagnosis : collaborating for solutions. Forum summary. Récupéré de http://www.torontocentrallhin.on.ca/~/media/sites/tc/New%20media%20folder/Community%20Engagement/Reports/DualDiagnosisForumSummaryFINAL.pdf?la=en
- Centre national de ressources textuelles et lexicales (2017). Définition de crise. Récupéré de : http://www.cnrtl.fr/définition/crise
- Crates, N. et Spicer, M. (2012). Developing behavioural training services to meet defined standards within an Australian statewide disability service system and the associated client outcomes. Journal of Intellectual & Developmental Disability, 37(3), 196-208.
- Cudré-Mauroux, A. (2010). Staff attributions about challenging behaviours of people with intellectual disabilities and transactional stress process: a qualitative study. Journal of Intellectual Disability Research, 54(1), 26-39.
- Dean, J., Lynch, B., Gordham, K., Craven, K. et Duerscheidt, D. (2007). Building Oregon’s capacity to serve individuals with complex support needs: recommendations for action. Récupéré de http://reinventingquality.org/docs/DTurner10-handout3.pdf
- Došen, A., Gardner, W. I., Griffiths, D. M., King, R. et Lapointe, A. (2007). Practice guidelines and principles: assessment, diagnosis, treatment, and related support services for persons with intellectual disabilities and problem behaviour. Gouda, Netherlands : Centre of Consultation and Expertise.
- Durand, V. M., Hieneman, M., Clarke, S., Wang, M. et Rinaldi, M.L. (2013). Positive family intervention for severe challenging behavior I: a multisite randomized clinical trial. Journal of Positive Behavior Interventions, 15(3), 133-143.
- Emerson, E. (2013). Commentary: childhood exposure to environmental adversity and the well-being of people with intellectual disabilities. Journal of Intellectual Disability Research, 57(7), 589-600.
- Fédération québécoise des centres de réadaptation en déficience intellectuelle et troubles envahissants du développement (2010). Guide de pratique. Le service d’adaptation et de réadaptation auprès des personnes ayant des troubles graves du comportement (TGC). Récupéré de http://fqcrdited.org/wp-content/uploads/2013/01/GUIDE-TGC1.pdf
- Frawley, P. et Vecchione, E. (2002). The Vermont crisis intervention network: nine years of prevention. Dans R. H. Hanson, N. A. Wieseler, K. C. Lakin et D. L. Braddock (dir.), Crisis : prevention and response in the community. (p. 49-77). Washington, DC : American Association on Mental Retardation.
- Gardner, W. I., Došen, A., Griffiths, D. M. et King, R. (2006). Practice guidelines for diagnostic, treatment and related support services for persons with developmental disabilities and serious behavioral problems. Kingston, NY : NADD Press.
- Grey, I. M., McClean, B. et Barnes-Homes, D. (2002). Staff attributions about the causes of challenging behaviours: Effects of training in multi-element behaviour support. Journal of Intellectual Disabilities, 6(3), 297-312.
- Hartley, S. L. et MacLean, W. E. Jr. (2008). Coping strategies of adults with mild intellectual disability for stressful social interactions. Journal Mental Health in Intellectual Disabilities, 1(2), 109-127.
- Hassiotis, A., Robotham, D., Canagasabey, A., Romeo, R., Langridge, D., Blizard, R.,… King, M. (2009). Randomized, single-blind, controlled trial of a specialist behavior therapy team for challenging behavior in adults with intellectual disabilities. The American Journal of Psychiatry, 166(11), 1278-1285.
- Hastings, R. P. (2005). Staff in special education settings and behaviour problems: towards a framework for research and practice. Educational Psychology, 25(2-3), 207-221.
- Hulbert-Williams, L. et Hastings, R. P. (2008). Life events as a risk factor for psychological problems in individuals with intellectual disabilities: a critical review. Journal of Intellectual Disability Research, 52(11), 883-895.
- Initiative pour les soins primaires en déficience intellectuelle (2012). Outils portant sur les soins primaires auprès des personnes présentant une déficience intellectuelle (1re édition). Toronto, Ontario : MUNS Guideline Clearinghouse.
- Janssen, C. G. C., Schuengel, C. et Stolk, J. (2002). Understanding challenging behaviour in people with severe and profound intellectual disability: a stress-attachment model. Journal of Intellectual Disability Research, 46(6), 445-453.
- Lambrechts, G., Kuppens, S. et Maes, B. (2009). Staff variables associated with the challenging behaviour of clients with severe or profound intellectual disabilities. Journal of Intellectual Disability Research, 53(7), 620-632.
- LaVigna, G. W. et Willis, T. J. (1992). A model for multielement treatment planning and outcomes measurement. Dans D. E. Berkell (dir.), Autism: identification, education, and treatment (p. 135-149). Hillsdale, NJ : Lawrence Erlbaum Associates Inc.
- LaVigna, G. W. et Willis, T. J. (2002). Counter-intuitive strategies for crisis management within a non-aversive framework. Dans D. Allen (dir.), Ethical approaches to physical interventions: Responding to challenging behaviour in people with intellectual disabilities (p. 89-103). Kidderminster, Angleterre : BILD Publications.
- LaVigna, G. W. et Willis, T. J. (2005). A positive behavioural support model for breaking the barriers to social and community inclusion. Tizard Learning Disability Review, 10(2), 16-23.
- LaVigna, G. W. et Willis, T. J. (2012). The efficacy of positive behavioural support with the most challenging behaviour: the evidence and its implications. Journal of Intellectual & Developmental Disability, 37(3), 185-195.
- Lazarus, R. S. et Folkman, S. (1984). Stress, appraisal and coping. New York, NY : Springer.
- Le nouveau Petit Robert (2009). Dictionnaire alphabétique et analogique de la langue française. Paris, France : Dictionnaires Le Robert.
- Levitas, A. S. et Gilson, S. F. (2001). Predictable crises in the lives of people with mental retardation. Mental Health Aspects of Developmental Disabilities, 4(3), 89-100.
- Levitas, A. et Hurley, A. D. (2007). Adjustement disorders. Dans R. Fletcher, E. Loschen, C. Stavrakaki et M. First (dir.), Diagnostic manual – intellectual disability: a clinical guide for diagnosis of mental disorders in persons with intellectual disability (DM-ID) (p. 301-311). Kingston, NY : NADD Press.
- Lindsay, W. R., Hastings, R. P. et Beech, A. R. (2011). Forensic research in offenders with intellectual and developmental disabilities 1: prevalence and risk assessment. Psychology, Crime & Law, 17(1), 3-7.
- Luiselli, J. K. (2012). Therapeutic implementation of physical restraint. Dans J. K. Luiselli (dir.), The handbook of high-risk challenging behaviors in people with intellectual and developmental disabilities (p. 243-256). Baltimore, MD : Paul H. Brookes Publishing Co.
- Lunsky, Y. (2008). The impact of stress and social support on the mental health of individuals with intellectual disabilities. Salud Publica de Mexico, 50(2), 151-153
- Lunsky, Y., Gracey, C. et Gelfand, S. (2008). Emergency psychiatric services for individuals with intellectual disabilities: perspectives of hospital staff. Intellectual and Developmental Disabilities, 46(6), 446-455.
- Lunsky, Y., Lin, E., Balogh, R., Klein-Geltink, J., Bennie, J., Wilton, A. S. et Kurdyak, P. (2011). Are adults with developmental disabilities more likely to visit EDs? American Journal of Emergency Medicine, 29(4), 463-465.
- Lupien, S. (2010). Par amour du stress. Montréal, QC : Les Éditions au Carré.
- McClean, B., Dench, C., Grey, I., Shanahan, S., Fitzsimons, E., Hendler, J. et Corrigan, M. (2005). Person focused training: a model for delivering positive behavioural supports to people with challenging behaviours. Journal of Intellectual Disability Research, 49(5), 340-352.
- McClean, B. et Grey, I. (2007). Modifying challenging behaviour and planning positive supports. Dans A. Carr, G. O’Reilly, P. N. Walsh et J. McEvoy (dir.), The handbook of intellectual disability and clinical psychology practice (p. 643-684). New York, NY : Routledge.
- McDonnell, A., Waters, T. et Jones, D. (2002). Low arousal approaches in the management of challenging behaviour. Dans D. Allen (dir.), Ethical approaches to physical interventions: Responding to challenging behaviour in people with intellectual disabilities (p. 104-113). Kidderminster, Angleterre : BILD Publications.
- McLaughlin, D. M. et Carr, E. G. (2005). Quality of rapport as a setting event for problem behavior: Assessment and intervention. Journal of Positive Behavior Interventions, 7(2), 68–91.
- McVilly, K. R. (2009). Physical restraint in disability services: current practices, contemporary concerns, and future directions. Récupéré de http://www.dhs.vic.gov.au/__data/assets/pdf_file/0010/607708/osp_physcialrestraintindisabilityservicescurrentpractices_300309.pdf
- Ministère de la Santé et des Services sociaux. (2010). Comité interministériel MSP-MSSS sur les interventions policières en situation d’urgence auprès des personnes ayant une déficience intellectuelle. Québec, Québec : La Direction des communications du ministère de la Santé et des Services sociaux du Québec.
- Ministère des Services sociaux et communautaires (2011). Directives à l’intention des Organismes de Services. Loi de 2008 sur les services et soutiens favorisant l’inclusion sociale des personnes ayant une déficience intellectuelle. Pour la prestation des services aux adultes ayant une déficience intellectuelle. Récupéré de http://www.mcss.gov.on.ca/documents/fr/mcss/publications/developmental/policy_service_frdirective/Policy%20Directives_FR_DS.pdf
- Mitchell, J. T. (2007). Group crisis support: Why it works, when & how to provide it. Ellicott City, MD : Chevron Publishing Corp.
- Nader-Grosbois, N. (2012). Régulation des émotions chez l’enfant à développement atypique. Dans M. Mikolajczak et M. Desseilles (dir.), Traité de régulations des émotions (p.459-472). Louvain-La-Neuve : De Boeck.
- Reed, D. D. (2013). Introduction. Dans D. D. Reed, F. D. DiGennaro Reed et J. K. Luiselli (dir.), Handbook of crisis intervention and developmental disabilities (p. 1-4). New York, NY : Springer.
- Reed, D. D., DiGernnaro Reed, F. D. et Luiselli, J. K. (2013). Préface. Dans D. D. Reed, F. D. DiGennaro Reed et J. K. Luiselli (dir.), Handbook of crisis intervention and developmental disabilities (p. v-vii). New York, NY : Springer New York.
- Rosen, A. (2007). Crisis management in the community. Récupéré de http://pandora.nla.gov.au/nph-wb/20000131130000/http://www.mja.com.au/public/mentalhealth/course/08rosen.pdf
- Royal College of Psychiatrists (2003). Meeting the mental health needs of adults with a mild learning disability: Council Report CR115. Récupéré de http://www.rcpsych.ac.uk/files/pdfversion/cr115.pdf www.rcpsych.ac.uk/files/pdfversion/cr115.pdf
- Royal College of Psychiatrists, British Psychological Society et Royal College of Speech and Language Therapists (2007). Challenging behaviour: a unified approach. Clinical and service guidelines for supporting people with learning disabilities who are at risk of receiving abusive or restrictive practices: College Report CR144. Récupéré de http://www.rcpsych.ac.uk/files/pdfversion/cr144.pdf
- Rubin, I. L., Fahs, J. J. et Beasley, J. B. (2007). Delivery of health care for people with “dual diagnosis”: from the person to the policy. Mental Health Aspects of Developmental Disabilities, 10(3), 1-11.
- Russell, L. (2011). Reactive management strategies. Dans S. Hardy et J. Joyce (dir.), Challenging behaviour and people with learning disabilities: a handbook (p. 65-72). Brighton, Angleterre : Pavilion Publishing Ltd.
- Sabourin, G. (2014). État des pratiques en intervention de crise : les écarts entre les pratiques actuelles dans le réseau de la santé et des services sociaux et les meilleures pratiques identifiées dans la recension des écrits. Centre intégré de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec. (Document interne).
- Sabourin, G., Couture, G., Morin, D. et Proulx, R. (2015). Intervention de crise auprès de personnes ayant une déficience intellectuelle avec ou sans troubles envahissants du développement : une recension critique des écrits en consultation avec les parties prenantes. Les collections de l’Institut universitaire en DI et en TSA. Centre intégré de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec.
- Sabourin, G., Hamel, G. et Beaulieu, Y. (2016). Grille de repérage des facteurs de risque de crises comportementales et de TGC. Centre intégré de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec/Institut universitaire. Document de travail.
- Sabourin, G. et Lapointe, A. (soumis). Deux modèles d’intervention en trouble grave du comportement (TGC) : comparaisons et améliorations possibles. Revue québécoise de psychologie, article soumis pour publication.
- Sabourin, G. et Moreau, I. (2017). Étude de validation de contenu de la grille de repérage des facteurs de risque de crises comportementales et de TGC. Centre intégré de santé et de services sociaux de la Mauricie-et-du-Centre-du-Québec\Institut universitaire. Document de travail.
- Sabourin, G., Senécal, P. et Paquet, M. (2016). EGCP-II-R - Échelle d’évaluation des comportements problématiques II, révisée (Manuel de l’utilisateur). Montréal, Canada. SQETGC | CIUSSS de la Mauricie-et-du-Centre-du-Québec.
- Schuiringa, H., van Nieuwenhuijzen, M., Orobio de Castro, B. et Matthys, W. (2016). Executive functions and processing speed in children with mild to borderline intellectual disabilities and externalizing behavior problems. Child Neuropsychology, 23(4), 442-462.
- Scott, H. M. et Havercamp, S. M. (2014). Mental health for people with intellectuale disability: the impact of stress and social support. American Journal on Intellectual and Developmental Disabilities, 119(6), 552-564.
- Séguin, M., Brunet, A. et LeBlanc, L. (2006). Intervention en situation de crise et en contexte traumatique. Montréal, QC : Gaëtan Morin Éditeur.
- Sinclair, M., Blencowe, A., McCaig, L. et Misch, P. (2013). Neuropsychological findings from a forensic neuropsychology clinic at a South East London tier 4 CAMHS. Advances in Mental Health and Intellectual disabilites, 7(2), 93-107.
- Singh, N. N., Lancioni, G. E., Winton, A. S. W., Curtis, W. J., Wahler, R. G. Sabaawi, M.,… McAleavey, K. (2006a). Mindful staff increase learning and reduce aggression in adults with developmental disabilities. Research in Developmental Disabilities, 27(5), 545-558.
- Singh, N. N., Lancioni, G. E., Winton, A. S. W., Fisher, B. C., Wahler, R. G., McAleavey, K.,… Sabaawi, M. (2006b). Mindful parenting decreases aggression, noncompliance, and self-injury in children with autism. Journal of Emotional and Behavioral Disorders, 14(3), 169-177.
- Singh, N. N., Lancioni, G. E., Winton, A. S. W., Singh, A. N., Adkins, A. D. et Singh, J. (2009). Mindful staff can reduce the use of physical restraints when providing care to individuals with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 22(2), 194-202.
- Steptoe, L. R., Lindsay, W. R., Murphy, L. et Young, S. J. (2008). Construct validity, reliability and predictive validity of the Dynamic Risk Assessment and Management System (DRAMS) in offenders with intellectual disability. Legal and Criminological Psychology, 13(2), 309-321.
- Tassé, M. J., Havercamp, S. M. et Thompson, C. (2006). Practice guidelines in working with individuals who have developmental disabilities. Concord, NC : PBH.
- Tassé, M. J., Sabourin, G., Garcin, N. et Lecavalier, L. (2010). Définition d’un trouble grave du comportement chez les personnes ayant une déficience intellectuelle. Revue canadienne des sciences du comportement, 42(1), 62-69.
- Thompson, R. A. (2014). Socialization of emotion and emotion regulation in the family. Dans J. J. Gross (dir.), Handbook of emotion regulation (2e éd.) (p. 173-186). New York, NY : The Guilford Press.
- Wagner, G. A. (2002). Behavioral and crisis services in California. Dans R. H. Hanson, N. A. Wieseler, K. C. Lakin et D. L. Braddock (dir.), Crisis: prevention and response in the community (p. 79-94). Washington, DC : American Association on Mental Retardation.
- Wieseler, N. A., Hanson, R. H. et Oslund, J. M. (2002). The Minnesota crisis system: a public-private collaboration. Dans R. H. Hanson, N. A. Wieseler, K. C. Lakin et D. L. Braddock (dir.), Crisis : prevention and response in the community (p. 63-78). Washington, DC : American Association on Mental Retardation.
- Weiss, J. A., Slusarczyk, M. et Lunsky, Y. (2012). Individuals with intellectual disabilities who live with family and experience psychiatric crisis: who uses the emergency department and who stays home? Journal of Mental Health Research in Intellectual Disabilities, 4(3), 158-171.
- Williams, D. E. (2010). Reducing and eliminating restraint of people with developmental disabilities and severe behavior disorders: an overview of recent research. Research in Developmental Disabilities, 31(6), 1142-1148.