Résumés
Abstract
In an era in which Canadian governments are focused on increasing families’ access to affordable early learning and childcare (ELCC), there are increasing concerns about the inclusion of children with disabilities. This paper reports on the experiences of parents of children with disabilities in accessing ELCC programs in British Columbia. Findings highlight four interrelated themes: experiences of unbelonging; systemic mechanisms that reinforce unbelonging; impacts of unbelonging on children, parents, and families; and experiences of inclusion and belonging. The paper concludes with a discussion on opportunities for disrupting structural ableism and reorienting towards a childcare system in which all children can belong.
Keywords:
- children's rights,
- intersectionality,
- belonging,
- disability,
- inclusion
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Parties annexes
Biographical notes
Tabatha Berggren (community researcher) is of British, Scottish, and Métis ancestry. Tabatha and her family live on the traditional and treaty territory of the Tla’amin Nation. Tabatha strives to advocate for accessibility and inclusivity in community spaces at the intersection of health research, Indigeneity, and public policy. Email: berggrentabatha@gmail.com
Alison Gerlach is a white settler who holds herself accountable to the Indigenous peoples of Turtle Island, including the stewards of the lands that she occupies. Her research aims to inform how community-based early years and child disability systems of care can be inclusive of and responsive to families whose lived experiences include colonial violence, racialization, and discrimination. Her research explicitly attends to the historical and political contexts within which complex issues of inequity and exclusion are situated. Email: alisongerlach@uvic.ca
As an adjunct professor and consultant, Janet Newbury does research, engagement, and writing related to family and community wellness. Her ancestors are English on both sides and she lives and works on the traditional and treaty territory of the Tla’amin Nation. In both her personal and professional life, Janet is deeply committed to ongoing decolonial and anticolonial transformation. All of her work involves the active pursuit of social and structural justice. Email: newburyj@uvic.ca
Bibliography
- Albert, S. M., & Powell, R. M. (2022). Ableism in the child welfare system: Findings from a qualitative study. Social Work Research, 46(2), 141–152. https://doi.org/10.1093/swr/svac005
- Balter, A.-S., Feltham, L. E., Parekh, G., Douglas, P., Underwood, K., & van Rhijn, T. (2023). Re-imagining inclusion through the lens of disabled childhoods. Social Inclusion, 11, 48–59. https://doi.org/10.17645/si.v11i1.5722
- BC Early Years Professional Development Hub. (2022). The foundations of inclusive childcare training (Part 1). https://bcearlyyearshub.ca/courses/foundations-inclusive-child-care-training/
- BC Representative for Children and Youth. (2023). Still left out: Children and youth with disabilities in BC. https://rcybc.ca/wp-content/uploads/2023/11/RCY_Still-Left-Out_Nov2023_Final_10-Nov-2023.pdf
- Berggren, T., & Newbury, J. (2023). BC’s child care crisis in context from a parent’s perspective. The Early Childhood Educator, 38(3), 8–10.
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. https://doi.org/10.1191/1478088706qp063oa
- Braun, V., & Clarke, V. (2022). Toward good practice in thematic analysis: Avoiding common problems and be(com)ing a knowing researcher. International Journal of Transgender Health. https://doi.org/10.1080/26895269.2022.212597
- Curran, T. (2013). Disabled children’s childhood studies: Critical approaches in a global context. Palgrave Macmillan.
- Eirikson, E. (2021). The role of child and youth care practitioners in promoting belonging for youth with disabilities. Relational Child & Youth Care Practice, 34(3), 40–50. http://www.rcycp.com/
- Frankel, E. B., Chan, E., & Underwood, K. (2019). Inclusion is an experience, not a placement. eceLINK Peer Reviewed Collection, 2(2), 25–34. https://drive.google.com/file/d/1xA22Yravwjea_VUON0betuCNBsI7UbRQ/view?pli=1
- Gerlach, A. J., Sinha, V., & Lach, L. (2024). The consequences of “benevolent” colonial powers and structural inequities in the implementation of Jordan’s Principle in Manitoba, Canada. AlterNative: An International Journal of Indigenous Peoples, 1–11. https://doi.org/10.1177/11771801241255144
- Goodley, D., Lawthom, R., Liddiard, K., & Runswick-Cole, K. (2019). Provocations for critical disabilities studies. Disability & Society, 34(6), 972–997. https://doi.org/10.1080/09687599.2019.1566889
- Government of British Columbia. (n.d.). Early childhood intervention programs. https://www2.gov.bc.ca/gov/content/health/managing-your-health/child-behaviour-development/assessing-child-development-38610
- Government of British Columbia. (2019). Inclusive childcare toolkit: Supporting children of all abilities. https://www2.gov.bc.ca/assets/gov/family-and-social-supports/child-care/running-a-daycare-or-preschool/inclusive-child-care/inclusive-childcare-toolkit.pdf
- Government of Canada. (2017). Multilateral early learning and childcare framework. https://www.canada.ca/en/employment-social-development/programs/early-learning-child-care/reports/2017-multilateral-framework.html
- Government of Canada, Assembly of First Nations, Inuit Tapiriit Kanatami, & Métis National Council. (2018). Indigenous early learning and childcare framework. https://www.canada.ca/en/employment-social-development/programs/indigenous-early-learning/2018-framework.html
- Guo, K., & Dalli, C. (2016). Belonging as a force of agency: An exploration of immigrant children’s everyday life in early childhood settings. Global Studies of Childhood, 6(3), 254–267. https://doi.org/10.1177/2043610616665036
- Haim-Litevsky, D., Komemi, R., & Lipskaya-Velikovsky, L. (2023). Sense of belonging, meaningful daily life participation, and well-being: Integrated investigation. International Journal of Environmental Research and Public Health, 20(5). https://doi.org/10.3390/ijerph20054121
- Hyslop, K. (2022). Disabled kids are falling through BC’s child-care gap. The Tyee. https://thetyee.ca/News/2022/08/04/Disabled-Kids-Falling-Through-BC-Child-Care-Gap/
- Inclusive Early Childhood Service System (IECSS). (2022). Policy brief no. 12: Policy recommendations for inclusive early childhood services. https://www.torontomu.ca/content/dam/inclusive-early-childhood-service-system/findings/briefs/IECSS(2022)_EN_PolicyBriefNo.12Policyrecommendationsforinclusiveearlychildhoodservices_Nov_2022.pdf
- Irwin, S. H., & Lero, D. S. (2021). Inclusion quality: Children with disabilities in early learning and childcare in Canada. https://specialinkcanada.org/resources/Inclusion%20Quality.pdf
- Lalvani, P., & Bacon, J. K. (2019). Rethinking “we are all special”: Anti-ableism curricula in early childhood classrooms. Young Exceptional Children, 22(2), 87–100. https://doi.org/10.1177/1096250618810706
- Long, T., & Guo, J. (2023). Moving beyond inclusion to belonging. International Journal of Environmental Research and Public Health, 20(20), 6907. https://www.mdpi.com/1660-4601/20/20/6907
- MacDonald, D. & Friendly, M. (2023). Not done yet: $10-a-day childcare requires addressing Canada’s childcare deserts. Canadian Center for Policy Alternatives. Retrieved 20 December 2023. https://policyalternatives.ca/sites/default/files/uploads/publications/National%20Office/2023/05/not-done-yet%20%281%29.pdf
- Maich, K., van Rhijn, T., Lero, D. S., & Irwin, S. H. (2019). Assessing inclusion quality: The specialink early childhood inclusion quality scale. Exceptionality Education International, 29(3), 92–112. https://doi.org/10.5206/eei.v29i3.9389
- McIsaac, J.-L. D., Smith, M. E., Turner, J., McLean, C., & Harkins, M. J. (2023). The perceived value of a universal early learning program: A parent perspective. Journal of Child and Family Studies, 32(4), 977–988. https://doi.org/10.1007/s10826-021-02214-9
- Newbury, J., & Gerlach, A. J. (2022). Parents pushing for equity and inclusion in the child care system in BC. https://inclusionbc.org/wp-content/uploads/2022/11/InclusiveChildcare2.pdf
- Pesonen, H. V., Äikäs, A., Viljamaa, E., Heiskanen, N., Syrjämäki, M., & Kärnä, E. (2023). Professionals’ stories of supporting belonging for autistic children in Finnish early childhood education and care. Contemporary Issues in Early Childhood. https://doi.org/10.1177/14639491231212943
- Prentice, S., & White, L. A. (2019). Childcare deserts and distributional disadvantages: The legacies of split childcare policies and programmes in Canada. Journal of International and Comparative Social Policy, 35(1), 59–74. https://doi.org/10.1080/21699763.2018.1526700
- Puroila, A.-M., Juutinen, J., Viljamaa, E., Sirkko, R., Kyrönlampi, T., & Takala, M. (2021). Young children’s belonging in Finnish educational settings: An intersectional analysis. International Journal of Early Childhood, 53(1), 9–29. https://doi.org/10.1007/s13158-021-00282-y
- Runswick-Cole, K., Curran, T., & Liddiard, K. (Eds.). (2018). The Palgrave handbook of disabled children’s childhood studies. Palgrave MacMillan.
- Selby, J. M., Bradley, B. S., Sumsion, J., Stapleton, M., & Harrison, L. (2018). Is infant belonging observable? A path through the maze. Contemporary Issues in Early Childhood, 19(4), 404–416. https://doi.org/10.1177/1463949118793330
- Strnadová, I., Johnson, K., & Walmsley, J. (2018). “… but if you’re afraid of things, how are you meant to belong?” What belonging means to people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 31(6), 1091–1102. https://doi.org/https://doi.org/10.1111/jar.12469
- Teachman, G. (2016). Interrogating inclusion: Critical research with disabled youth who use augmentative and alternative communication [Doctoral dissertation, University of Toronto]. TSpace. https://tspace.library.utoronto.ca/handle/1807/73207
- Underwood, K., Frankel, E., Parekh, G., & Janus, M. (2019). Transitioning work of families: Understanding trans-institutional power in early childhood programs and services. Exceptionality Education International, 29(3), 135–153. https://ojs.lib.uwo.ca/index.php/eei/article/view/9391
- Underwood, K., van Rhijn, T., Balter, A.-S., Feltham, L. E., Douglas, P., Parekh, G., & Lawrence, B. (2021). Pandemic effects: Ableism, exclusion and procedural bias. Journal of Childhood Studies, 46(3), 16–29. https://doi.org/10.18357/jcs463202119970
- van Rhijn, T., Underwood, K., Frankel, E., Lero, D. S., Spalding, K., Janus, M., Friendly, M., & Haché, A. (2021). Role of childcare in creating inclusive communities and access for all. Canadian Public Policy, 47(3), 399–409. https://doi.org/10.3138/cpp.2021-010
- Weglarz-Ward, J., & Santos, R. M. (2018). Parent and professional perceptions of inclusion in childcare: A literature review. Infants & Young Children, 31(2), 128–143. https://doi.org/10.1097/IYC.0000000000000115
- Wiart, L., Kehler, H., Rempel, G., & Tough, S. (2014). Current state of inclusion of children with special needs in childcare programmes in one Canadian province. International Journal of Inclusive Education, 18(4), 345–358. https://doi.org/10.1080/13603116.2013.767386