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Journal on Developmental Disabilities special issue on FASD[Notice]

The First Peoples Child & Family Review was honored to partner with the Journal on Developmental Disabilities (JoDD) to produce sister issues on Fetal Alcohol Spectrum Disorder. The following are abstracts from the JoDD’s upcoming issue. The adoptive father of a young man with FASD tells the story of his family’s journey towards getting a diagnosis and how this helped him to better understand his son. He describes the struggles and the joys the family experienced along the way and how the knowledge and understanding that followed the diagnosis enabled them to adjust their expectations in order to improve the quality of life of their son and the whole family. Fetal Alcohol Spectrum Disorder (FASD) has been identified as a major public health concern. However, limited research has used longitudinal data to track the developmental life course of these individuals. Furthermore, women who drink during preg- nancy are not a homogenous group. Concerns regarding drink- ing behaviours in women who are or could become pregnant are therefore of great concern. The aim of this paper is to provide an overview of a number of risk factors that contribute to a woman’s drinking during pregnancy and FASD risk, as well as the sub- sequent lifespan outcomes that occur in individuals with FASD. In this review of the Canadian film Defendor, a story of a man with FASD who believes himself to be a superhero, the author turns to interviews with the film’s director and star (Woody Harrelson), as well as other media reviews of the film, to explore both the expectations for the film and how it has been received by film critics and movie-goers. The author was a clinician in a diagnostic FASD clinic who met with Harrelson as he prepared for the role. Speaking to Harrelson’s efforts to do justice to his portrayal, Edwards concludes that the film delivers a hopeful message about FASD. He notes that the film makes clear the struggles typically experienced by someone with FASD but suggests that it also demonstrates how a person with FASD can make positive difference in the world. As part of a research project exploring cinematic representations of people with intellectual and developmental disabilities (IDD), a group of researchers comprised of people with and without IDD reviewed the Canadian film Defendor. The group generally liked this film in which the main character, Arthur, is a man with FASD. What was most interesting to us was that the Arthur, like Superman and Batman, was a ‘regular guy’ during the day but a ‘superhero’ by night – fighting crime and avenging the death of his mother. The purpose of the research project, however, was to explore how people with IDD are portrayed in Hollywood film and the messages that non-disabled audiences would take from a movie about persons with IDD. It is still rare to see films in which the lead character has an IDD, even rarer to see a person with an IDD portrayed as a superhero. In this review, we talk about whether this portrayal worked to give audiences an alternative way of understanding persons with FASD or reinforced long-standing negative beliefs and attitudes. Fetal Alcohol Spectrum Disorder (FASD) may be associated with a variety of challenges including developmental disabilities, hyperactivity, attention and impulse control problems, language delays, and social skills deficits. These problems can lead to “secondary disabilities” such as mental health issues, academic and vocational failure, substance abuse, and interactions with the justice system. Parents of children with FASD often struggle with the overwhelming demands of supporting their children. In this study Participatory Action Research was used to …