Abstracts
Résumé
Le hacking médical transpose à la médecine et à la santé le slogan hacker « l’information veut être libre ». Cet article porte sur un groupe de hackers connu sous le nom de Four Thieves Vinegar Collective (Collectif du vinaigre des quatre voleurs). Au nom de l’« autonomie corporelle », le collectif s’efforce d’abattre les restrictions d’accès et de contourner les formes de contrôle dans le secteur de la santé. Le hacking médical est le dernier recours pour ceux qui ont été exclus du système de santé publique, que ce soit à cause de l’abandon progressif par l’État néolibéral de ses précédentes obligations envers ses citoyens, ou parce que des groupes réactionnaires s’emparent de l’État et restreignent l’accès des minorités aux services de santé. À la lumière de cette enquête de terrain, nous discuterons les questions suivantes : Quel type de système de confiance peut se substituer à l’autorité précédemment investie dans le corps médical et les institutions de santé publique? Quelles stratégies individuelles et collectives voit-on se développer en l’absence d’expertise et de réglementation de santé adossées à l’autorité de l’État?
Mots-clés :
- hacking médical,
- médecine alternative,
- technologie do-it-yourself,
- autonomie corporelle,
- mouvements sociaux de santé
Abstract
Medicine hacking applies the motto “information wants to be free” to medicine and health. This paper discusses a hacker group called Four Thieves Vinegar Collective. Under the banner of “bodily autonomy”, the collective strives to raze obstacles to access and upend gatekeeping functions in the healthcare sector. Medicine hacking is the last resort for those who have been excluded from the public health care system, either because of the steady retraction of the neoliberal state from its former obligations towards its citizens, or because reactionary groups have captured the state and are using it to curtail health care for minorities. Questions discussed in connection with this case study are: What kind of trust system replaces the authority that was once invested in medical professionals and public health authorities? What individual and collective strategies develop in the absence of state-sanctioned and trusted public health expertise and regulations?
Keywords:
- medicine hacking,
- alternative medicine,
- do-it-yourself technology,
- bodily autonomy,
- health social movements
Resumen
El hacking médico aplica el lema “la información quiere ser libre” en la medicina y la salud. Este artículo analiza un grupo de hackers llamado “ Four thieves vinegar collective ”. Bajo el lema de la «autonomía corporal», el colectivo se esfuerza por derribar los obstáculos al acceso y acabar con las funciones de control en el sector sanitario. El hacking médicoes el último recurso para quienes han sido excluidos del sistema sanitario público, ya sea por la constante retracción del Estado neoliberal de sus antiguas obligaciones para con sus ciudadanos, o porque grupos reaccionarios se han apoderado del Estado y lo utilizan para restringir la atención sanitaria de las minorías. Las cuestiones que se debaten a la luz de este estudio de caso son: ¿Qué tipo de sistema de confianza sustituye a la autoridad de la que antaño estaban investidos los profesionales médicos y las autoridades sanitarias públicas? ¿Qué estrategias individuales y colectivas se desarrollan en ausencia de conocimientos y normativas de salud pública sancionados por el Estado?
Palabras clave:
- hacking médico,
- medicina alternativa,
- tecnología do-it-yourself,
- autonomía corporal,
- movimientos sociales por la salud
Appendices
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