ror.org/057w15z03
Appendices
Bibliographie
- Giebel, C., Hassan, S., McIntyre, J. C., Corcoran, R., Barr, B., Gabbay, M., Downing, J., Comerford, T., et Alfirevic, A. (2019). Public involvement in the dissemination of the North West Coast Household Health Survey: Experiences and lessons of co-producing research together. Health expectations: an international journal of public participation in health care and health policy, 22(4), 643–649. https://doi.org/10.1111/hex.12940
- Hahn, D. L., Hoffmann, A. E., Felzien, M., LeMaster, J. W., Xu, J., et Fagnan, L. J. (2017). Tokenism in patient engagement. Family practice, 34(3), 290–295. https://doi.org/10.1093/fampra/cmw097
- Hamilton, C. B., Hoens, A. M., Backman, C. L., McKinnon, A. M., McQuitty, S., English, K., et Li, L. C. (2018). An empirically based conceptual framework for fostering meaningful patient engagement in research. Health expectations: an international journal of public participation in health care and health policy, 21(1), 396–406. https://doi.org/10.1111/hex.12635
- ICHOM Connect. (s. d.) Patient-Centered Outcome Measures. https://connect.ichom.org/patient-centered-outcome-measures/heart-valve-disease/
- Lauzon-Schnittka, J., Audette-Chapdelaine, S., Boutin, D., Wilhelmy, C., Auger, A. M., et Brodeur, M. (2022). The experience of patient partners in research: a qualitative systematic review and thematic synthesis. Research involvement and engagement, 8(1), 55. https://doi.org/10.1186/s40900-022-00388-0
- Majid U. (2020). The Dimensions of Tokenism in Patient and Family Engagement: A Concept Analysis of the Literature. Journal of patient experience, 7(6), 1610–1620. https://doi.org/10.1177/2374373520925268
- National Health Service England. (2017, 6 April). Involving people in their own health and care: Statutory guidance for clinical commissioning groups and NHS England (publication No. 06664). https://www.england.nhs.uk/wp-content/uploads/2017/04/ppp-involving-people-health-care-guidance.pdf
- Nielssen, I., Ahmed, S., Zelinsky, S., Dompe, B., Fairie, P., et Santana, M. J. (2023). Co-building a training programme to facilitate patient, family and community partnership on research grants: A patient-oriented research project. Health expectations: an international journal of public participation in health care and health policy, 26(4), 1584–1595. https://doi.org/10.1111/hex.13763
- Richards, D. P., Poirier, S., Mohabir, V., Proulx, L., Robins, S., et Smith, J. (2023). Reflections on patient engagement by patient partners: how it can go wrong. Research involvement and engagement, 9(1), 41. https://doi.org/10.1186/s40900-023-00454-1
- Tscherning, S. C., Bekker, H. L., Vedelø, T. W., Finderup, J., et Rodkjær, L. Ø. (2021). How to engage patient partners in health service research: a scoping review protocol. Research involvement and engagement, 7(1), 20. https://doi.org/10.1186/s40900-021-00268-z