LA QUALITÉ DE VIE D’ENFANTS AVEC LE SYNDROME DE GILLES DE LA TOURETTE

J.-Nolin, Gabrielle; Leclerc, Julie

doi:https://doi.org/10.7202/1078922ar

Agou, S., Locker, D., Streiner, D. L. et Tompson, B. (2008). Impact of self-esteem on the oral-health-related quality of life of children with malocclusion. American Journal of Orthodontics and Dentofacial Orthopedics, 134(4), 484-489.

10.1016/j.ajodo.2006.11.021 Google Scholar

APA. (2013). Diagnostic and statistical manual of mental disorders, (5^e éd.). American Psychiatric Association.

10.1007/978-90-481-9063-8_134 Google Scholar

Battle, J. (1992). Culture-free Self-esteem Inventories: Form A and Form B for Children, Form AD for Adults. Pro-Ed.

10.1177/0883073812465121 Google Scholar

Ben-Arieh, A., Casas, F., Frønes, I. et Korbin, J. E. (2014). Multifaceted concept of childwell-being. In Handbook of Child Well-Being (p. 1-27). Springer.

10.1007/978-90-481-9063-8_134 Google Scholar

Bitsko, R. H., Danielson, M., King, M., Visser, S. N., Scahill, L. et Perou, R. (2013). Health care needs of children with Tourette syndrome. Journal of Child Neurology, 28(12), 1626-1636.

10.1177/0883073812465121 Google Scholar

Bloch, M. H. et Leckman, J. F. (2009). Clinical course of Tourette syndrome. Journal of Psychosomatic Research, 67(6), 497-501.

10.1016/j.jpsychores.2009.09.002 Google Scholar

Cavanna, A. E., David, K., Bandera, V., Termine, C., Balottin, U., Schrag, A. et Selai, C. (2013a). Health-related quality of life in Gilles de la Tourette syndrome: A decade of research. Behavioural neurology, 27(1), 83-93.

10.1155/2013/732038 Google Scholar

Cavanna, A. E., Luoni, C., Selvini, C., Blangiardo, R., Eddy, C. M., Silvestri, P. R. et Termine, C. (2013b). The Gilles de la Tourette Syndrome-Quality of Life Scale for children and adolescents (GTS-QOL-C&A) : development and validation of the Italian version. Behavavioural Neurology, 27(1), 95-103.

10.1155/2013/140210 Google Scholar

Cavanna, A., Servo, S., Monaco, F. et Robertson, M. (2009). The behavioral spectrum of Gilles de la Tourette syndrome. The Journal of Neuropsychiatry and Clinical Neurosciences, 21 (1), 13-23.

10.1176/jnp.2009.21.1.13 Google Scholar

Cohen, S. C., Leckman, J. F. et Bloch, M. H. (2013). Clinical assessment of Tourette syndrome and tic disorders. Neuroscience et Biobehavioral Reviews, 37(6), 997-1007.

10.1016/j.neubiorev.2012.11.013 Google Scholar

Cohen, M., Mansoor, D., Langut, H. et Lorber, A. (2007). Quality of life, depressed mood, and self-esteem in adolescents with heart disease. Psychosomatic Medicine, 69(4), 313-318.

10.1097/PSY.0b013e318051542c Google Scholar

Conners, C. K. (2008). Conners (3^e éd.). Multi-Health Systems Inc.

10.1177/0004867415594429 Google Scholar

Conelea, C. A., Woods, D. W., Zinner, S. H., Budman, C., Murphy, T., Scahill, L. D., ... Walkup, J. (2011). Exploring the impact of chronic tic disorders on youth: Results from the Tourette Syndrome Impact Survey. Child Psychiatry and Human Development, 42(2), 219-242.

10.1007/s10578-010-0211-4 Google Scholar

Eapen, V., Črnčec, R., McPherson, S. et Snedden, C. (2013). Tic disorders and learning disability: clinical characteristics, cognitive performance and comorbidity. Australasian Journal of Special Education, 37(2), 162-172.

10.1017/jse.2013.2 Google Scholar

Eapen, V., Snedden, C., Črnčec, R., Pick, A. et Sachdev, P. (2016). Tourette syndrome, co-morbidities and quality of life. Australian and New Zealand Journal of Psychiatry, 50(1), 82-93.

10.1177/0004867415594429 Google Scholar

Eddy, C. M., Cavanna, A. E., Gulisano, M., Agodi, A., Barchitta, M., Calì, P., ... Rizzo, R. (2011). Clinical correlates of quality of life in Tourette syndrome. Movement Disorders, 26(4), 735-738.

10.1002/mds.23434 Google Scholar

Eiser, C. et Morse, R. (2001). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 156.

10.3310/hta5040 Google Scholar

Erbilgin Gün, S. et Kilincaslan, A. (2019). Quality of life among children and adolescents with Tourette Disorder and Comorbid ADHD: a clinical controlled study. Journal of Attention Disorders, 23(8), 817–827.

10.1177/1087054718772158 Google Scholar

Evans, J., Seri, S. et Cavanna, A. E. (2016). The effects of Gilles de la Tourette syndrome and other chronic tic disorders on quality of life across the lifespan: a systematic review. European Child et Adolescent Psychiatry, 25(9), 939-948.

10.1007/s00787-016-0823-8 Google Scholar

Fayers, P. et Machin, D. (2007). Quality of life: the assessment, analysis and interpretation of patient-reported outcomes. John Wiley et Sons.

10.1001/archpsyc.1989.01810110048007 Google Scholar

Freeman, R. D., Fast, D. K., Burd, L., Kerbeshian, J., Robertson, M. M. et Sandor, P. (2000). An international perspective on Tourette syndrome : selected findings from 3500 individuals in 22 countries. Developmental Medicine et Child Neurology, 42(7), 436-447.

10.1017/S0012162200000839 Google Scholar

Ghanizadeh, A., et Mosallaei, S. (2009). Psychiatric disorders and behavioral problems in children and adolescents with Tourette syndrome. Brain & Development, 31(1), 15-19.

10.1016/j.braindev.2008.03.010 Google Scholar

Giraldo, B. O., David, M., Sánchez, Y., Miranda, J., Sierra, J. M. et Cornejo, J. W. (2013). Prevalence of Tics Among 6- to 12-Year-Old Schoolchildren in the Itagüi Municipality, Colombia, in 2010. Journal of Child Neurology, 28(11), 1406-1411.

10.1177/0883073812471431 Google Scholar

Goodman, W. K., Price, L. H., Rasmussen, S. A., Mazure, C., Fleischmann, R. L., Hill, C. L., et Charney, D. S. (1989). The Yale-Brown obsessive compulsive scale: I. Development, use, and reliability. Archives of General Psychiatry, 46(11), 1006-1011.

10.1001/archpsyc.1989.01810110048007 Google Scholar

Hesapçıoğlu, S. T., Tural, M. K. et Kandil, S. (2014). Quality of life and self-esteem in children with chronic tic disorder. Turk pediatri arsivi, 49(4), 323–332.

10.5152/tpa.2014.1947 Google Scholar

J-Nolin, G. et Leclerc, J. (2019). La mesure de la qualité de vie : nouvel horizon dans l’évaluation des traitements des enfants présentant un syndrome de Gilles de la Tourette. Revue de psychoéducation, 48(2), 373-396.

10.7202/1066148ar Google Scholar

J-Nolin, G. et Leclerc, J. (sous presse). The effect of a specific cognive-behavioural therapy for children with Tourette's disorder on their quality of life. Behaviour Research and Therapy.

10.1007/s00787-012-0278-5 Google Scholar

Khalifa, N., et Von Knorring, A.-L. (2006). Psychopathology in a Swedish population of school children with tic disorders. Journal of the American Academy of Child & Adolescent Psychiatry, 45(11), 1346-1353.

10.1097/01.chi.0000251210.98749.83 Google Scholar

Knight, T., Steeves, T., Day, L., Lowerison, M., Jette, N. et Pringsheim, T. (2012). Prevalence of Tic disorders: a systematic review and meta-analysis. Pediatric Neurology, 47(2), 77-90.

10.1016/j.pediatrneurol.2012.05.002 Google Scholar

Koot, H. et Wallander, J. (2014). Quality of life in child and adolescent illness: Concepts, methods and findings. Routledge.

10.4324/9781315800592 Google Scholar

Landolt, M. A., Grubenmann, S. et Meuli, M. (2002). Family Impact Greatest: Predictors of Quality of Life and Psychological Adjustment in Pediatric Burn Survivors. Journal of Trauma and Acute Care Surgery, 53(6), 1146-1151.

10.1097/00005373-200212000-00019 Google Scholar

Lebowitz, E. R., Motlagh, M. G., Katsovich, L., King, R. A., Lombroso, P. J., Grantz, H., ... Leckman, J. F. (2012). Tourette syndrome in youth with and without obsessive compulsive disorder and attention deficit hyperactivity disorder. European Child et Adolescent Psychiatry, 21(8), 451-457.

10.1007/s00787-012-0278-5 Google Scholar

Leckman, J. F., Riddle, M. A., Hardin, M. T., Ort, S. I., Swartz, K. L., Stevenson, J., et Cohen, D. J. (1989). The Yale Global Tic Severity Scale: Initial Testing of a Clinician-Rated Scale of Tic Severity. Journal of the American Academy of Child & Adolescent Psychiatry, 28(4), 566-573.

10.1097/00004583-198907000-00015 Google Scholar

Leckman, J. F., Zhang, H., Vitale, A., Lahnin, F., Lynch, K., Bondi, C.,... Peterson, B. S. (1998). Course of tic severity in Tourette syndrome: the first two decades. Pediatrics, 102(1), 14-19.

10.1542/peds.102.1.14 Google Scholar

Leclerc, J., Goulet, G., Hamel, N. et O’Connor, K.P. (2013). Façotik; Léa et Nico font face aux tics. Guides méthodologiques (enfant et thérapeute). Centre d’études pour les troubles obsessionnels et les tics.

10.1016/j.amp.2005.11.003 Google Scholar

Lippman, L. H. (2007). Indicators and indices of child well-being: A brief American history. Social Indicators Research, 83(1), 39-53.

10.1007/s11205-006-9058-2 Google Scholar

Liu, S., Zheng, L., Zheng, X., Zhang, X., Yi, M. et Ma, X. (2017). The subjective quality of life in young people with Tourette Syndrome in China. Journal of Attention Disorders, 21(5), 426-432.

10.1177/1087054713518822 Google Scholar

Mancebo, M. C., Eisen, J. L., Sibrava, N. J., Dyck, I. R. et Rasmussen, S. A. (2011). Patient utilization of cognitive-behavioral therapy for OCD. Behavior therapy, 42(3), 399-412.

10.1016/j.beth.2010.10.002 Google Scholar

Matthews, M., Eustace, C., Grad, G.,& Pelcovitz, D. (1985). A family systems perspective on Tourette's Syndrome. International Journal of Family Psychiatry, 6(1), 53-66.

10.1016/j.neuropharm.2012.05.043 Google Scholar

Maxwell, J. (2001). Indicators of Quality of Life in Canada: A Citizens’ Prototype. Canadian Policy Research Networks. https://uwaterloo.ca/canadian-index-wellbeing/sites/ca.canadian-index-wellbeing/files/uploads/files/Indicators_of_Quality_of_Life_in_Canada.sflb__0.pdf

10.1093/jpepsy/jsw071 Google Scholar

Missotten, P., Etienne, A.-M. et Dupuis, G. (2007). La qualité de vie infantile : état actuel des connaissances. Revue francophone de clinique comportementale et cognitive, 12(4), 14-27.

10.1097/00004583-199706000-00023 Google Scholar

Moos, R.H et Moos, B.S. (2002). Family Environment Scale manual. Development, applications, research (3^e éd.). Mind Garden.

10.1016/j.jaac.2011.11.004 Google Scholar

Organisation mondiale de la Santé. (1946). Constitution. https://www.who.int/fr/about/who-we-are/constitution

10.1002/mds.26089 Google Scholar

Organisation mondiale de la Santé. (2018). Process of translation and adaptation of instruments. http://www.who.int/substance_abuse/research_tools/translation/en/

10.1016/j.psychsport.2006.12.004 Google Scholar

Orth, U., Robins, R. W. et Widaman, K. F. (2012). Life-span development of self-esteem and its effects on important life outcomes. Journal of Personality and Social Psychology, 102(6), 1271.

10.1037/a0025558 Google Scholar

Patrick, D. L. et Deyo, R. A. (1989). Generic and disease-specific measures in assessing health status and quality of life. Medical Care, 27(3), 217-232.

10.1097/00005650-198903001-00018 Google Scholar

Purper-Ouakil, D., Wohl, M., Cortese, S., Michel, G. et Mouren, M. C. (2006). Le trouble déficitaire de l’attention–hyperactivité (TDAH) de l’enfant et de l’adolescent. Annales Médico-psychologiques, revue psychiatrique, 164(1), 63-72.

10.1016/j.amp.2005.11.003 Google Scholar

Pringsheim, T., Okun, M. S., Müller-Vahl, K., Martino, D., Jankovic, J., Cavanna, A. E., ... et Oskoui, M.(2019). Practice guideline recommendations summary: treatment of tics in people with Tourettesyndrome and chronic tic disorders. Neurology, 92(19), 896-906.

10.1212/WNL.0000000000007466 Google Scholar

Rivera-Navarro, J., Cubo, E. et Almazán, J. (2014). The impact of Tourette’s syndrome in the school and the family: Perspectives from three stakeholder groups. International Journal for the Advancement of Counselling, 36(1), 96-113.

10.1007/s10447-013-9193-9 Google Scholar

Robertson, M. M. (2000). Tourette syndrome, associated conditions and the complexities of treatment. Brain: A Journal of Neurology, 123(3), 425-462.

10.1093/brain/123.3.425 Google Scholar

Robitaille, C., et Vezina, N. (2003). Trouble de déficit de l’attention/hyperactivité : agir ensemble pour mieux soutenir les jeunes. Gouvernement du Québec.

10.1097/00005650-200108000-00006 Google Scholar

Roessner, V., Schoenefeld, K., Buse, J., Bender, S., Ehrlich, S. et Münchau, A. (2013). Pharmacological treatment of tic disorders and Tourette Syndrome. Neuropharmacology, 68, 143-149.

10.1016/j.neuropharm.2012.05.043 Google Scholar

Rybak, T. M., Ali, J. S., Berlin, K. S., Klages, K. L., Banks, G. G., Kamody, R. C., ... et Guest Editors: Cynthia A. Gerhardt, Cynthia A. Berg, Deborah J. Wiebe and Grayson N. Holmbeck. (2017). Patterns of family functioning and diabetes-specific conflict in relation to glycemic control and health-related quality of life among youth with type 1 diabetes. Journal of Pediatric Psychology, 42(1), 40-51.

10.1093/jpepsy/jsw071 Google Scholar

Scahill, L., Riddle, M. A., McSwiggin-Hardin, M., Ort, S. I., King, R. A., Goodman, W. K.,... Leckman, J. F. (1997). Children's yale-brown obsessive compulsive scale: reliability and validity. Journal of the American Academy of Child and Adolescent Psychiatry, 36(6), 844-852.

10.1097/00004583-199706000-00023 Google Scholar

Scharf, J. M., Miller, L. L., Mathews, C. A., et Ben-Shlomo, Y. (2012). Prevalence of Tourette syndrome and chronic tics in the population-based avon longitudinal study of parents and children cohort. Journal of the American Academy of Child et Adolescent Psychiatry, 51(2), 192-201.

10.1016/j.jaac.2011.11.004 Google Scholar

Scharf, J. M., Miller, L. L., Gauvin, C. A., Alabiso, J., Mathews, C. A. et Ben-Shlomo, Y. (2015). Population prevalence of Tourette syndrome: A systematic review and meta-analysis. Movement Disorders, 30(2), 221-228.

10.1002/mds.26089 Google Scholar

Schipper H. (1983). Why measure quality of life? Canadian Medical Association Journal, 128(12), 1367–1370.

Google Scholar

Standage, M. et Gillison, F. (2007). Students’ motivational responses toward school physical education and their relationship to general self-esteem and health-related quality of life. Psychology of Sport and Exercise, 8(5), 704-721.

10.1016/j.psychsport.2006.12.004 Google Scholar

Steeves, T., McKinlay, B. D., Gorman, D., Billinghurst, L., Day, L., Carroll, A., ... et Pringsheim, T. (2012). Canadian guidelines for the evidence-based treatment of tic disorders: behavioural therapy, deep brain stimulation, and transcranial magnetic stimulation. The Canadian Journal of Psychiatry, 57(3), 144-151.

10.1177/070674371205700303 Google Scholar

Stern, M. R., Nota, J. A., Heimberg, R. G., Holaway, R. M. et Coles, M. E. (2014). An initial examination of emotion regulation and obsessive compulsive symptoms. Journal of Obsessive-Compulsive and Related Disorders, 3(2), 109-114.

10.1016/j.jocrd.2014.02.005 Google Scholar

Termine, C., Luoni, C., Fontolan, S., Selvini, C., Perego, L., Pavone, F.,... Cavanna, A. E. (2016). Impact of co-morbid attention-deficit and hyperactivity disorder on cognitive function in male children with Tourette syndrome: A controlled study. Psychiatry Research, 243, 263-267.

10.1016/j.psychres.2016.06.048 Google Scholar

Untas, A., Rascle, N., Cosnefroy, O., Borteyrou, X., Saada, Y. et Koleck, M. (2011). Psychometric properties of the french adaptation of the Family relationship index (FRI). L’Encéphale, 37(2), 110-118.

10.1016/j.encep.2010.04.008 Google Scholar

Vallerand. R. (2006). Les fondements de la psychologie sociale. Éditions de la Chenelière Inc.

Google Scholar

VanVoorhis, C. W. et Morgan, B. L. (2007). Understanding power and rules of thumb for determining sample sizes. Tutorials in quantitative methods for psychology, 3(2), 43-50.

10.20982/tqmp.03.2.p043 Google Scholar

Varni, J., Seid, M. et Rode, C. (1999). The PedsQLTM: Measurement model for the Pediatric Quality of Life Inventory. Medical Care, 37, 126-139.

10.1097/00005650-199902000-00003 Google Scholar

Varni, J., Seid, M. et Kurtin, P. (2001). PedsQLTM 4.0 : Reliability and validity of the Pediatric Quality of Life InventoryTM Version 4.0 Generic Core Scales in healthy and patient populations. Medical Care, 39, 800-812.

10.1097/00005650-200108000-00006 Google Scholar

Wallander, J. L., Schmitt, M. et Koot, H. M. (2001). Quality of life measurement in children and adolescents : Issues, instruments, and applications. Journal of Clinical Psychology, 57(4), 571-585.

10.1002/jclp.1029 Google Scholar

Wilkinson, B. J., Newman, M. B., Shytle, R. D., Silver, A. A., Sanberg, P. R. et Sheehan, D. (2001). Family impact of Tourette's syndrome. Journal of Child and Family Studies, 10(4), 477-483.

10.1023/A:1016713508665 Google Scholar

Woods, D. W., Piacentini, J., Chang, S., Deckersbach, T., Ginsburg, G., Peterson, A.,... et Wilhelm, S.(2008). Managing Tourette syndrome: A behavioral intervention for children and adults therapistguide. Oxford University Press

10.1093/med:psych/9780195341287.001.0001 Google Scholar

Woods, D. W., Piacentini, J. C., et Himle, M. B. (2007). Assessment of tic disorders. Dans D.W Woods, J.C., Piacentini et J.T. Walkup (dir.), Treating Tourette syndrome and tic disorders: A guide for practitioners (p. 21-37). The Guilford Press.

Google Scholar

Zeigler-Hill, V. (2011). The connections between self-esteem and psychopathology. Journal of Contemporary Psychotherapy, 41(3), 157-164.

10.1007/s10879-010-9167-8 Google Scholar

LA QUALITÉ DE VIE D’ENFANTS AVEC LE SYNDROME DE GILLES DE LA TOURETTETHE QUALITY OF LIFE OF CHILDREN WITH TOURETTE DISORDER[Record]

Résumé

Abstract

Bibliographie

Abstracts

Résumé

Abstract

Appendices

Bibliographie

Citation Tools

Cite this article

Export the record for this article