Résumés
Résumé
Les mères d’enfants ayant des incapacités sont plus présentes qu’autrefois sur le marché du travail. Toutefois, leurs expériences sont méconnues. Cet article présente des résultats d’entrevues effectuées auprès de onze mères franco-ontariennes qui cumulent un emploi et les soins à dispenser à un enfant ayant le trouble d’hyperactivité avec déficit de l’attention (THADA). Ces mères vivent plusieurs défis reliés aux comportements de l’enfant et aux attitudes négatives. Ces deux défis ont beaucoup d’impact sur leur vie familiale, personnelle et professionnelle. Compte tenu du fardeau et du peu de soutien disponible, elles doivent accomplir une triple journée de travail ou faire des concessions sur le plan de leur carrière.
Parties annexes
Bibliographie
- ANTHONY et Gene FISHER (2001). «Lessons learned», The ADDovcate, vol. 17, 1-3.
- BAKER, David et Kevin, McCAL (2005). «Parenting stress in parents of children with attention-deficit hyperactivity disorder and parents of children with learning disabilities», Journal of child and family studies, vol. 4, no 1, 57-68.
- BALDWIN, Kevin, Ronald BROWN et Michael MILAN (1995). «Predictors of stress in caregivers of attention deficit hyperactivity disordered children», American Journal of Family Therapy, vol. 23, no 2, 149-160.
- BARKLEY, Russell (1995). Taking charge of ADHD, New York, Guilford Press.
- BARKLEY, Russell (1997). ADHD and the nature of self control, New York, Guilford Press.
- BARNETT, Rosalind, Robert BRENNAN et Nancy MARSHALL (1994). «Gender and the relationship between parent role quality and psychological distress: A study of men and women in dual-earning couples», Journal of Family Issues, vol.15, no 2, 229-252.
- BARUCH, Grace, Rosalind BARNETT (1986). «Role quality, multiple role involvement, and psychological well-being in midlife women», Journal of personality and social psychology, vol. 51, no 3, 578-585.
- BERNIER, James, Deborah, SIEGEL (1994). «Attention deficit hyperactivity disorder: A family and ecological systems perspective», Families in Society: The Journal of Contemporary Human Services, vol. 75, 142-150.
- BIEDERMAN, Joseph et al. (1995). «Family environment risk factors for attention-deficit hyperactivity disorder», Archives of General Psychiatry, vol. 52, 464-470.
- BOYCE, Glenna, Brent, MILLER, Karl WHITE et Michael, GODFREY (1995). «Single parenting in families of children with disabilities», Marriage & family Review, vol. 20, nos 3-4, 389-409.
- BRETON, Margot (1998). «Le service social de groupe dans une approche de partenariat», Revue canadienne de service social, vol. 15, no 2, 193-205.
- BRISTOL, Marie, James, GALLAGHER et Eric, SCOPLER (1988). «Mothers and fathers of young developmentally disabled and nondisabled boys: Adaptation and spousal support», Developmental, vol. 24, no 3, 441-451.
- BULLOCK, Anne, Roxana, Ng, Gillian, Walker et Jacob Muller (1990). «Community care: Ideology and lived experience», dans Ng, R. Walker, G. et J. Muller, J. éd., Community organisation and the Canadian state, Toronto, Gramond, 65-82.
- CANCIAN, Francesca et Stacey, OLIKER (2000). Caring and gender, New York, Atlanta.
- DESCARRIES, Francine et Christine, CORBEIL (1998). La valse d’hésitation des mères en emploi: d’hier à aujourd’hui, Quatrième symposium québécois sur la famille, Sillery.
- DEVAULT, Marjorie (1999). «Comfort and struggle. Emotion work in family life», the Annals of the American Academy of Political and Social Science, vol. 56, 52-63.
- FEWELL Rebecca, (1990). «Parenting moderately handicapped persons», dans M. Seligman, éd., The family with a handicapped child, Boston, Allyn and Bacon, 203-236.
- FLOYD, Franklin et Eric GALLAGHER (1997). «Parental stress, care demands, and use of support services for school-age children with disabilities and behavior problems», Family Relations, vol. 46, no 4, 359-371.
- GAGNON, André (2001). Démystifier les maladies mentales, les troubles de l’enfance et de l’adolescence, Boucherville, Gaëtan Morin éditeur.
- GERSON, Kathleen (1998). «Gender and the future of the family: Implication for the post industrial workplaces», dans D et P. Vanney, D et P, Dubeck, éd., Challenges for work and family in the twenty first century, New York, Aldine de Gruyter.
- GREENSPAN, Miriam. (1998). «Exceptional mothering in a normal world», dans Garcia Coll., C. Surrey, J. et K. Weingarten, éd. Mothering Against the Odds, New York, Guilford, 37-60.
- HOME, Alice (1997). «Learning the hard way: Role strain, stress, role demands, and support in multiple-role women students», Journal of Social Work Education, vol. 33, no 2.
- HOME, Alice et Stephanie PEARCE, Stephanie (2002). «Mothering children with ADHD: What we’ve learned so far», The Canadian, 12-14.
- HUBERMAN, Michael et Matthew MILLES (1991). Analyse de données qualitatives. Recueil de nouvelles méthodes, traduction de l’anglais par Catherine De Backer et Vivian Lamongie, Bruxelles, De Boeck, Wesmael.
- INSTITUT VANIER DE LA FAMILLE (1998). It’s the kitchen to the boardroom table, Ottawa, Institut Vanier.
- JACOBS, Edward (1998). Fathering the ADHD child, Northvale, Aronson.
- JENKINS, David (1997). «Women, work and care giving. How do these roles affect women’s well-being?», Journal of women and aging, vol. 9, no 3, 27-45.
- L’ÉCUYER, René (1985). «L’analyse de contenu. Notions et étapes», dans Jean-Pierre Deslauriers, éd. 2e édition, Les méthodes de la recherche qualitative, Québec, Les Presses de l’Université du Québec, 65-84.
- LEE, D. (1998). Having it all, having enough, New York, Amacom.
- MACDONALD, T, POETNER et J., PIERPONT (1999). «Predicting caregiver stress: An ecological perspective», American Journal of Orthopsychiatry, vol. 9, no 1, 100-109.
- MARCENKO, Maureen et Judith, MEYERS(1991). «Mothers of children with developmental disabilities: Who shares the burden?», Family Relations, vol. 40, 186-190.
- MARDIROS, Marilyn. (1985). «Role alterations of female parents having children with disabilities», Canada’s Mental Health, vol. 33, no 4, 24-26.
- PATTON, Michael (1994). Qualitative evaluation and research methods, Newbury Park, Sage.
- ROCHER Institute (2000). Beyond the limits: Mothers caring for children with disabilities, North York, Ont., L’institut Rocher Institute.
- SELIGMAN, Milton et Rosalyn, DARLING (1997). Ordinary families, special children. 2nd, New York, Guilford.
- SHEARN, Julia et Stuart, TODD (2000). «Maternal employment and family responsibilities: The perspective of mothers of children with intellectual disabilities», Journal of Applied Research in Intellectual Disabilities, vol. 13, 109-131.
- SIMMEL, Edward, Daniel, BROOKS et S., HINDSHAW (2001). «Externalizing symptomatology among adoptive youth: Prevalence and preadoption risk factors», Journal of Emotional and Behavioral Disorders, vol. 5, no 4, 223-229.
- SLOPER, Patricia (1999). «Models of service support for parents of disabled children. What we know? What we need to know?», Child Care, Health & Development, vol. 25, no 2, 85-99.
- SNYDER, Marlene (2000). «AD/HD and co-existing disorders ACHADD fact sheet», The ADDvocate, 15.
- TÉTREAULT, Sylvie et Linda BLANCHETTE (1991). «Réflexion sur la condition de la mère de l’enfant handicapé: une intervention féministe à développer», Service social, vol. 40, no 2,117-143.
- TRAUSTADOTTIR, Rannveig (1991). «Mothers who care: Gender, disability, and family life», Journal of Family Issues, vol. 1, no 2, 211-228.
- VIOLA, Sylvie (1997). Concerns and perceptions of parents of children and adolescents with Attention-deficit-hyperactivity-disorder, Unpublished doctoral thesis, Indiana State University.
- WILLOUGHBY, Jennifer et Loraine, MARSTER-GLIDDEN (1995). «Fathers helping out: Shared child care and marital satisfaction of parents of children with disabilities», American Journal on Mental Retardation, vol. 99, no 4, 399-406.
10.7202/706531ar