Abstracts
Résumé
Contexte. Les parents d’enfants ayant une DI ou un TSA rapportent généralement un stress plus élevé que les parents d’enfants à développement typique, ce qu’on a peu étudié au Québec. Méthode. Quatre groupes de 144 parents (ayant un enfant sans DI ni TSA; avec DI; avec TSA; avec DI et TSA) ont complété des mesures de stress parental, de soutien social et rapporté des informations concernant leur enfant. Résultats. Les analyses de variance et des contrastes prévus indiquent que les parents du groupe DI-TSA obtiennent les plus hauts niveaux de stress. Par ordre décroissant, viennent ensuite les groupes TSA, DI, et sans DI ou TSA. Les enfants du groupe DI-TSA présentent plus de comportements problématiques, de moins bonnes habiletés adaptatives et moins d’habiletés sociales. Leurs parents sont ceux qui reçoivent plus de soutien, mais également ceux qui en sont les moins satisfaits.
Abstract
Background. Parents of children with an ID or autism generally report higher stress than parents of typically developing children. Few studies however have explored this situation in Quebec. Method. Four groups of 144 parents (having a child without ID and autism; ID; autism; ID and autism) completed measures on parental stress, availability of social support, their perceptions on the helpfulness of these supports and on their child’s characteristics. Results. Results of a one-way ANOVA and planned contrasts indicated that parents of children with ID and autism had the highest reported stress levels, followed by the autism group, the ID group and the group without ID or autism. Children with ID and autism have more behavior problems, less adaptive behaviors and less social abilities. Their parents are the ones who are given more support but also those who report the lowest satisfaction levels with respect to the support received.
Appendices
Bibliographie
- Abbeduto, L. S., Seltzer, M. M., Shattuck, P., Wyngaargen Krauss, M., Orsmond, G., Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, Down syndrome, or Fragile X syndrome. American Journal on Mental Retardation, 109, 237-254.
- Abidin, R. R. (1995). Parenting Stress Index: Professional manual (3rd ed.). Odessa, FL : Psychological Assessment Resources.
- Aman, M. G., Tassé, M. J., Rojahn, J., Hammer, D. (1995). The Nisonger CBRF: A child behavior rating form for children with developmental disabilities. Research in Developmental Disabilities, 17, 41-57.
- American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders, (4th ed., text revision). Washington, DC : American Psychiatric.
- American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA : American Psychiatric Publishing.
- Baker, B. L., Blacher, J., Crnic, K. A., Eldelbrock, C. (2002). Behaviour problems and parenting stress in families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433-444.
- Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Eldelbrock, C., Low, C. (2003). Pre-school children with and without developmental delay: behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217-230.
- Baker-Ericzén, M. J., Brookman-Frazee, L., Stahmer, A. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons with Severe Disabilities, 30, 194-204.
- Beckman, P. J. (1991). Comparison of mother’s and father’s perceptions of the effect of young children with and without disabilities. American Journal on Mental Retardation, 95, 585-595.
- Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders, 36(5), 685-695.
- Bigras, M., Lafrenière, P., Abidin, R. R. (1996). Indice de Stress Parental: manuel francophone en complément à l'édition américaine. [Stress Parental Index: Francophone Manual in complement of American Edition]. New York : Multi-Health Systems Inc.
- Bishop, S. L., Richler, J., Cain, A. C., Lord, C. (2007). Predictors of perceived negative impact in mothers of children with autism spectrum disorder. American Journal on Mental Retardation,112, 450–461.
- Bromley, B. E., Blacher, J. (1991). Parental reasons for out-of-home placement of children with severe handicaps. Mental Retardation, 29, 275-280.
- Bromley, J., Hare, D. J., Davison, K., Emerson, E. (2004). Mothers supporting children with autism spectrum disorders — Social support, mental health status and satisfaction with services. Autism,8, 409-423.
- Breen, M. J., Barkley, R. A. (1988). Child psychopathology and parenting stress in girls and boys having attention deficit disorder with hyperactivity. Journal of Pediatric Psychology, 13, 265-280.
- Dabrowska, A., Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual DisabilityResearch, 54, 66-80.
- Douma, J. C. H., Dekker, M. C., Koot, H. M. (2006). Supporting parents of youths with intellectual disabilities and psychopathology. Journal of Intellectual Disability Research, 50, 570-581.
- Dunst, C. J., Jenkins, V., Trivette C. M. (1984). Family Support Scale : reliability and validity. Journal of Individual, Family, and Community Wellness 1, 45-52.
- Dunst, C. J., Trivette, C. M., Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. In C J. Dunst, C. M. Trivette, A. G. Deals (Éds.) Supporting and strengthening families: Methods, strategies and practices (Vol. 1) (pp. 152-160).Cambridge, MA : Brookline Books.
- Eisenhower, A. S., Baker, B. L., Blacher, J. (2005). Preschool children with intellectual disability: syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657-671.
- Ekas, N. V., Lickenbrock, D. M., Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274-1284.
- Fujiura, G. T. (1998). Demography of family households. American Journal on Mental Retardation, 103, 225-235.
- Girouard, N., Morin, I. N., Tassé, M. J. (1998). Étude de fidélité test-retest et accord interjuges de la grille d’évaluation comportementale pour enfants Nisonger (GÉCEN) [Test-retest and interrater reliability of the french version of the Nisonger Child Behavior Rating Form]. Revue francophone de la déficience intellectuelle, 9, 127-136.
- Griffith, G. M., Hastings, R. P., Nash, S., Hill, C. (2010). Using matched groups to explore child behavior problems and maternal well-being in children with Down syndrome and autism. Journal of Autism and Developmental Disorder, 40(5), 610-619.
- Hassall, R., Rose, J., McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability : the effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 49, 405-418.
- Hayes, S. A., Watson, S. L. (2012). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorder, 43(3), 629-642.
- Jokinen, N. S., Brown, R. I. (2005). Family quality of life from the perspective of older parents. Journal of Intellectual Disability Research, 49, 789-793.
- Kasari, C., Sigman, M. (1997). Linking parental perceptions to interactions in young children with autism. Journal of Autism and Developmental Disorders, 27(1), 39-57.
- Kennedy, S. L., Chrétien, M., Moxness, K. (2006). Effets sur le stress parental d’un programme d’intervention précoce pour les enfants ayant un trouble envahissant du développement. Dans H. Gascon, D. Boisvert, M. C. Haelewyck, J. R. Poulin, J. J. Detraux, J. J. (Éds.) (2006). Déficience intellectuelle : savoirs et perspectives d’action. Tome 1 : Représentations, diversité, partenariat et qualité. (pp. 515-530). Québec : Presses Inter Universitaires.
- Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., Van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149-e1158.
- Koegel, R. L., Schreibman, L., Loos, L. M., Dirlich-Wilhelm, H., Dunlap, G., Robbins, F. R., Plienis A. J. (1992). Consistent stress profiles in mothers of children with autism. Journal of Autism and Developmental Disorders, 22, 205-216.
- L’Abbé, Y., Morin, D. (2001). Comportements agressifs et retard mental: Compréhension et intervention. Eastman : Edition Behavioura.
- Lachance, L., Richer, L., Côté, A. (2007). Quelles stratégies d'ajustement peuvent protéger les parents de la détresse? Revue francophone de la déficience intellectuelle, 18, 24-31.
- Lacharité, C., Éthier, L. S., Piché, C. (1992). Le stress parental chez les mères d’enfants d’âge préscolaire : validation et normes québécoises pour l’Inventaire de Stress Parental. Santé mentale au Québec, 17(2), 183-204.
- Lecavalier, L., Leone, S., Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50, 172-183.
- Lunsky, Y., Havercamp, S. M. (1999). Distinguishing low levels of social support and social strain: implications for dual diagnosis. American Journal on Mental Retardation, 104, 200-204.
- Maurice, P., Morin, D., Tassé, M. J. (1997). Échelle québécoise de comportements adaptatifs (ÉQCA). Manuel technique. Montréal, Québec : Université du Québec à Montréal.
- Maurice, P., Morin, D., Tassé, M. J., Garcin, N., Vaillant, I. (1997). Manuel technique de l'Échelle québécoise de comportements adaptatifs (97,0). Département de psychologie, Université du Québec à Montréal.
- McIntyre, L. L., Blacher, J., Baker, B. L. (2002). Behaviour/mental health problems in young adults with intellectual disabilities: the impact on families. Journal of Intellectual Disability Research, 46, 239-249.
- Nachshen, J. S., Minnes, P. (2005). Empowerment in parents of school-aged children with and without developmental disabilities. Journal of Intellectual Disability Research, 49, 889-904.
- Nankervis, K., Rosewarne, A., Vassos, M. (2011). Why do families relinquish care? An investigation of the factors that lead to relinquishment into out-of-home respite care. Journal of Intellectual Disability Research, 55, 422-433.
- Norlin, D., Broberg, M. (2013). Parents of children with and without intellectual disability : couple relationship and individual well-being. Journal of Intellectual Disability Research, 57(6), 552-566.
- Norris, M. Lecavalier, L. (2011). Evaluating the validity of the Nisonger Child Behavior rating form- Parent version. Research in Developmental Disabilities, 32(6), 2894-2900.
- Olsson, M. B., Hwang, C. P. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45, 535-543.
- Ouyang, L., Grosse, S., Raspa M., Bailey, D. (2010). Employment impact and financial burden for families of children with Fragile X syndrome: Findings from the National Fragile X Survey. Journal of Intellectual Disability Research, 54(10), 918-928.
- Picard, I., Morin, D., De Mondehare, L. (soumis, juin 2013). Survey on services received and needs for support among parents of persons with intellectual disabilities in Quebec. Intellectual and Developmental Disabilities.
- Pinsula, E. (2007). A comparative study of stress profiles in mothers of children with autism and those of children with Down’s syndrome. Journal of Applied Research in Intellectual Disabilities, 20, 274-278.
- Richer, L., Lachance, L. Tremblay, K. N. (2007). La détresse des mères est-elle liée au QI et à la psychopathologie de l’enfant? Revue francophone de la déficience intellectuelle, 18, 15-22.
- Richer, L., Lachance, L., Tremblay, K. N., Côté, A. (2008). Les stratégies parentales et l'aide de l'entourage pour composer avec le stress. Revue francophone de la déficience intellectuelle, 19, 49-55.
- Roach, M. A., Orsmond, G. L., Barratt, M. S. (1999). Mothers and fathers of children with Down syndrome: parental stress and involvement in childcare. American Journal on Mental Retardation, 104, 422-436.
- Rodrigue, J. R., Morgan, S. B., Geffken, G. (1992). Psychological adaptation of fathers of children with autism, Down syndrome and normal development. Journal of Autism and Developmental Disorders, 22, 249-263.
- Rojahn, J., Tassé, M. J. (1996). Psychopathology in mental retardation. Dans J. W. Jacobson, J. A. Mulick (Éds.), Manual of diagnosis and professional practice in mental retardation (pp. 147-156). Washington, DC : American Psychological Association.
- Rutter, M. (1987). A Children's Behaviour Questionnaire for completion by teachers: preliminary findings. Journal of Child Psychology and Psychiatry, 8, 1-11.
- Seltzer, M. M., Greenberg, J. S., Floyd, F. J., Pettee, Y., Hong, J. (2001). Life course impacts of parenting a child with disability. American Journal on Mental Retardation, 106, 265-286.
- Schalock, R. L., Borthwick-Duffy, S., Bradley, V. J., Buntinx, W. E. M., Coulter, D. L.,Craig, E. M., Gomez, S. C., Lachapelle, Y., Luckasson, R., Reeve, A., Shogren, K. A., Snell, M. E., Spreat, S., Tassé, M. J., Thompson, J. R., Verdugo-Alonso, M. A., Wehmeyer, M. L., Yeager, M. H. (2011). Déficience intellectuelle : définition, classification et systèmes de soutien (11e éd.) [trad. sous la direction : D. Morin]. Trois-Rivières, Québec : Consortium national de recherche sur l’intégration sociale (Ouvrage original publié en 2010).
- Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T.,Baird, G. (2008). Psychiatric disorders in children with autism spectrum disorders: prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child & Adolescent Psychiatry, 47(8), 921-929.
- Singer, G. H. S. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111, 155-169.
- Taanila, A., Kokkonen, J., Jaervelin, M. J. (1996). The long term effects of children’s early onset disability on marital relationships. Developmental Medicine Child Neurology, 38, 567-577.
- Tassé, M. J., Aman, M. G., Hammer, D., Rojahn, J. (1996). The Nisonger CBRF: age and gender differences and normative data. Research in Developmental Disabilities, 17, 59-75.
- Tassé, M. J., Méthot, S., Bélanger, A., Bélanger, C. (2001). Efficacité d’un programme de formation à l'intervention pour comportements agressifs en résidence/réadaptation. Revue francophone de la déficience intellectuelle, 12, 133-143.
- Tassé, M. J., Morin, I. N., Girouard, N. (2000). Traduction et validation canadienne-française du Nisonger Child Behavior Rating Form [French-Canadian Translation and Validation of the Nisonger Child Behavior Rating Form]. Canadian Psychology, 41, 116-123.
- Tremblay, R. E., Desmarais-Gervais, L. (1985). Le questionnaire d’évaluation des comportements au préscolaire : manuel d’utilisation. Groupe de recherche sur la prévention de l’inadaptation psychosociale, Université de Montréal, Montréal.
- White, N., Hastings, R. P. (2004). Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 17, 181-190.
10.7202/502077ar