Abstracts
Abstract
Research on FASD has focused on medical/scientific findings (Gallicano, 2010; Jones, & Smith, 1973; Streissguth, Bookstein, Barr, Sampson, O’Malley, & Young, 2004). Continued medical research is thought to be helpful to our understanding of the origins of FASD and the interventions that help to address the psychosocial needs of persons with FASD. However, this paper stresses the need to also focus on the social aspects of FASD and the implications for human service workers who provide support for persons with FASD and their families. Gough and Fuchs (2006) indicate that although there is a growing prevalence of FASD-related disabilities, there is not a substantive knowledge base on child welfare practice in response to FASD. The need for human service workers to look beyond identifying a condition and addressing symptoms is emphasized. The author suggests human service workers need to prepare to work with children with FASD by reflectively appreciating the economic, legal, and cultural influences affecting persons as well as medically- and evidenced-based interventions.
Keywords:
- Fetal Alcohol Syndrome Disorder (FASD),
- medical perspectives,
- intervention,
- social support,
- human service workers
Appendices
Bibliography
- Alberta Human Services. (2012). Fetal Alcohol Syndrome Disorder (FASD). Retrieved from http://www.child.alberta.ca/home/594.cfm
- Astley, S. J., Bailey, D., Talbot, C., & Clarren, S. K. (2000). Fetal alcohol syndrome (FAS) primary prevention through diagnosis: II. A comprehensive profile of 80 birth mothers of children with FAS. Alcohol and Alcoholism, 35(5), 509-519.
- Bell, S. H., Stade, B., Reynolds, J. N., Rasmussen, C., Andrew, G., Hwang, P. A., & Carlen, P.L. (2010). The remarkably high prevalence of epilepsy and seizure history in fetal alcohol spectrum disorders. Alcoholism: Clinical and Experimental Research, 34(4), 1084-1089. doi:10.1111/j.15300277.2010.01184.x
- Bohjanen, S., Humphrey, M., & Ryan, S. M. (2009). Left behind: Lack of research-based interventions for children and youth with fetal alcohol spectrum disorders. Rural SpecialEducation Quarterly, 28(2), 32-38.
- Bracken, D. C. (2008). Canada’s Aboriginal people, Fetal Alcohol Syndrome & the criminal justice system. British Journal of Community Justice, 6(3), 21-33.
- Brown, J. D., George, N., Sintzel, J., St. Arnault, D. (2009). Benefits of cultural matching in foster care. Children and Youth Services Review, 31(9), 1019-1024.
- Chudley, A. E., Conry, J., Cook, J. L., Loock, C., Rosales, T., & LeBlanc, N. (2005). Canadian guidelines for diagnosis. Canadian Medical Association Journal, 172: S1–S21.
- De Ville, K. A., & Kopelman, L. M. (1999). Fetal protection in Wisconsin's revised child abuse law: Right goal, wrong remedy. Journal of Law, Medicine, & Ethics, 27(4), 332-342.
- Drabble, L. A., Poole, N., Magri, R., Tumwesigye, N. M., Li, Q., & Plant, M. (2011). Conceiving risk, divergent responses: Perspectives on the construction of risk of FASD in six countries. Substance Use Misuse, 46(8), 943-958.
- Farris-Manning, C., & Zandstra, M. (2007). Children in care in Canada. Canada: Child welfare League. Retrieved from http://www.nationalchildrensalliance.com/nca/pubs/2003/Children_in_Care_March_2003.pdf
- Fast, D. K., & Conry, J. (2009). Fetal alcohol spectrum disorders and the criminal justice system. Developmental Disability Research Reviews, 15(3), 250-7.
- Fast, D. K., Conry, J. L., & Loock, C.A. (1999). Identifying fetal alcohol syndrome (FAS) among youth in the criminal justice system. Journal of Developmental & Behavioral Pediatrics, 20(5), 370-372.
- Fetal Alcohol Spectrum Disorder Education. Lethbridge College. (2013). Retrieved from http://www.lethbridgecollege.ca/program/fasd
- Fuchs, D., Burnside, L., Marchenski, S., & Mudry, A. (2007). Children with FASD: Involved with the Manitoba child welfare system. Retrieved from http://www.cecw-cepb.ca/node/591
- Fuchs, D., Burnside, L., Marchenski, S., & Mudry, A. (2010). Children with FASD-Related disabilities receiving services from child welfare agencies in Manitoba. International Journal of Mental Health Addiction, 8(2), 232-244. doi 10.1007/s11469-009-9258-5.
- Gabriel, K., Hofmann, C., Glavas, M., & Weinberg, J. (1998). The hormonal effects of alcohol use on the mother and fetus. Alcohol Health & Research World, 22(3), 170-177.
- Gallicano, G. I. (2010). Alcohol and its effect on fetal development: What do we know? Pediatric Health, 4(5), 459-62.
- Goodley, D (2011). Disability studies: An interdisciplinary introduction. California, CA: Sage Publications Ltd.
- Gough, P., & Fuchs, D. (2006). Children with FASD-related disabilities receiving services from child welfare agencies in Manitoba. Toronto, ON: Centre of Excellence for Child Welfare. Retrieved from: http://www.cwrp.ca/publications/430
- Harwood, H. (2000). Updating estimates of the economic costs of alcohol abuse in the United States: estimates, update methods and data. Report prepared by the Lewin Group. Bethesda, MD: National Institute on Alcohol Abuse and Alcoholism.
- Harwood, H. J., & Napolitano, D. M. (1985). Economic implications of the fetal alcohol syndrome. Alcohol Health & Research World, 10(1):38-43; 74-75.
- Jacobs M. (1999, September 2). Is there no way to get FAS relief? The Edmonton Sun.
- Jones, K. L., & Smith, D.W. (1973). Recognition of the fetal alcohol syndrome in early infancy. The Lancet, 2(836), 999-1001.
- Kalberg, W. O., & Buckley, D. (2007). FASD: What types of intervention and rehabilitation are useful? Neuroscience & Biobehavioral Reviews, 31(2), 278- 285.
- Kellerman, T. (2005). Recommended Assessment Tools for Children and Adults with Confirmed Or Suspected FASD. Retrieved from http://comeover.to/FAS/AssessmentsFASD.htm
- Lethbridge College (2012). Programs and courses. Fetal Alcohol Syndrome disorder. Retrieved from http://www.lethbridgecollege.ca/program/fasd
- Levine, H. G. (1983). The good creature of god and the demon rum. In National Institute on Alcohol Abuse and Alcoholism (pp. 111-161), Research Monograph No. 12: Alcoholand disinhibition: Nature and meaning of the link, NIAAA, Rockville, MD, p. 115.
- Lupton, C., Burd, L., & Harwood, R. (2004). Cost of fetal alcohol spectrum disorders. American Journal of Medical Genetics, 127(1), 42– 50.
- Masotti, P., George, M. A., Szala-Meneok, K., Morton, A. M., Loock, C., Van Bibber, M., Ranford, J., Fleming, M., & MacLeod, S. (2006). Preventing fetal alcohol spectrum disorder in Aboriginal Communities: A methods development project. PLOS Medicine,3(1): e8.
- May, P. A., Fiorentino, D., Coriale, G., Kalberg, W. O., Hoyme, H. E., Aragon, A. S., Buckley, D., Stellavato, C., Gossage, J. P., Robinson, L. K., Jones, K. L., Manning, M., & Ceccanti, M. (2011). Prevalence of children with severe fetal alcohol spectrum disorders in communities near Rome, Italy: New estimated rates are higher than previous estimates. International Journal of Environmental Research and Public Health, 8(6), 2331-2351.
- Meekosha, H. & Dowse, L. (2007). Integrating critical disability studies into social work education and practice: An Australian perspective. Practice, 19(3), 169-183.
- Mullaly, B. (2010). Forms of oppression. Chapter 2. Oppression: An overview. Challengingoppression and confronting privilege (2nd.Ed.) (pp. 55-61). Toronto: ON: Oxford University Press.
- Premji, S., Serrett, K., Benzies, K., & Hayden, K. A. (2004). The state of the evidence review: Interventions for children and youth with a fetal alcohol spectrum disorder (FASD). Calgary, AB: Alberta Centre for Child, Family & Community Research.
- Ris, H. W. (1988). Fetal alcohol syndrome: legislation urgently needed. Journal of Public HealthPolicy, 9(4), 556-558.
- Rothman, J. (2003). Social work practice across disability. Boston: Allyn & Bacon.
- Root, A. W., Reiter, E. O., Andriola, M., & Duckett, G. (1975). Hypothalamic-pituitary function in the fetal alcohol syndrome. The Journal of Pediatrics, 87(4), 585-588. doi:10.1016/S00223476(75)808304
- Salmon, A. (2011). Aboriginal mothering, FASD prevention and the contestations of neoliberal citizenship. Critical Public Health, 21(2), 165-178.
- Stade, B. C. (2003). The burden of prenatal exposure to alcohol: Measurement of quality of lifeand costs. (Doctoral dissertation). University of Toronto (Canada). Available from ProQuest Dissertations and Theses database.
- Streissguth, A. P., Bookstein, F. L., Barr, H. M., Sampson, P. D., O’Malley, K. M., & Young, J. K. (2004). Risk factors for adverse life outcomes in fetal alcohol syndrome and fetal alcohol effects. Journal of Developmental & Behavioral Pediatrics,25(4), 228-238.
- Strömland, K. (1987). Ocular involvement in the fetal alcohol syndrome. Survey ofOphthalmology, 31(4), 277-284. doi:10.1016/0039-6257(87)90028-2
- Tellez-Zenteno, J. F., Pondal-Sordo, M, Matijevic, S., & Wiebe, S. (2004). National and regional prevalence of self-reported epilepsy in Canada. Epilepsia, 45, 1623-1629.
- Tait, C. (2003). The tip of the iceberg: The Making of fetal alcohol syndrome in Canada. Unpublished doctoral dissertation. McGill University, Montreal, PQ, Canada.
- Thanh, N. X., & Johnson, E. (2009). Costs of fetal alcohol spectrum disorder in Alberta, Canada. Canadian Journal of Clinical Pharmacology, 16(1), 80–90.
- Young, I. M. (1990). Justice and the politics of difference. Princeton, NJ: Princeton University Press.