Abstracts
Abstract
The Supports Intensity Scale – Adult Version (SIS-A) is a standardized assessment developed by the American Association of Intellectual and Developmental Disabilities that is designed to measure the support needs of persons with intellectual and developmental disabilities (IDD). The province of Manitoba, Canada, has adopted this assessment and administers it when persons with IDD reach the age of majority to measure individual support needs and to determine the allocation of public resources. As a part of a larger study examining the transition from school to adult life for young adults with disabilities in Manitoba, we investigated multiple participants’ satisfaction with, and perspectives about, the SIS-A. An online, anonymous survey was administered with persons with disabilities between the ages of 18 and 27, caregivers of persons with disabilities, educators, and service providers. A subset of participants (n = 143) indicated that they had participated in an SIS-A and were asked to rate their satisfaction with the SIS-A using a Likert scale and to “please explain” their response. Overall, satisfaction rates were low, with approximately one quarter of caregivers and one third of persons with disabilities and service providers reporting that they were satisfied or very satisfied. Educators reported the highest level of satisfaction at slightly over 50%. A thematic analysis of the open-ended survey responses (n = 98) regarding the participants’ satisfaction with the SIS-A revealed the following: (a) concerns about the accuracy of assessments, (b) inconsistent facilitation of the process, (c) potential for respondent-level factors to influence the outcome, (d) insufficient allocation of support using the seven-level supports budget framework and limited resources, (e) results not being used to enhance person-centred planning, and (f) the dehumanizing nature of the process. Based on these findings, a formal evaluation of the SIS-A in Manitoba is recommended, and suggestions for policy and practice are provided.
Keywords:
- Supports Intensity Scale,
- assessment,
- intellectual disability,
- public funding,
- secondary transition,
- ableism,
- multiple perspectives
Appendices
Bibliography
- Alberta Association for Community Living. (2014). Response to PDD community conversations: Supports Intensity Scale (SIS). https://inclusionalberta.org/clientuploads/AACL%20Postion%20on%20SIS%20June%202014.pdf
- American Association on Intellectual and Developmental Disabilities. (n.d.-a). AAIDD SIS programs. Retrieved March 23, 2026, from https://www.aaidd.org/sis/training/overview
- American Association on Intellectual and Developmental Disabilities. (n.d.-b). IDEA, transition planning, and the SIS. Retrieved March 23, 2026, from https://www.aaidd.org/sis/transition-planning
- American Association on Intellectual and Developmental Disabilities (AAIDD, n.d.-c). Supports Intensity Scale in North America. Retrieved March 23, 2026, from https://www.aaidd.org/sis/states-using-sis
- American Association on Intellectual and Developmental Disabilities (AAIDD, n.d.-d). Supports Intensity Scale in Translation. Retrieved March 23, 2026, from https://www.aaidd.org/sis/international
- American Association on Intellectual and Developmental Disabilities. (2015). Supports Intensity Scale – Adult Version™ Interview and Profile Form. https://www.aaidd.org/docs/default-source/sis-docs/here.pdf?sfvrsn=0
- American Association on Intellectual and Developmental Disabilities. (2021). Supports Intensity Scale – Children’s version™: Respondent handbook. https://www.aaidd.org/docs/default-source/sis-docs/sis-c/sis-c-respondent-handbook-july-2021-final.pdf?sfvrsn=daa3e21_0
- American Association on Intellectual and Developmental Disabilities. (2023a). Memo on the release of the SIS-A, second edition. https://www.aaidd.org/docs/default-source/sis-docs/sis-memo.pdf?sfvrsn=da3f21_6
- American Association on Intellectual and Developmental Disabilities. (2023b). Supports Intensity Scale – Adult version,® 2nd edition: Respondent handbook. https://www.aaidd.org/docs/default-source/sis-docs/sis-a/sis-a-2nd-ed-respondent-handbook-10-23.pdf?sfvrsn=58fb0221_0
- Arias, V. B., Amor, A. M., Verdugo, M. A., Fernández, M., Arias, B., & Aza, A. (2020). Toward a better “person–environment fit” through items calibration of the SIS-C. International Journal of Environmental Research and Public Health, 17(10), Article 3471. https://doi.org/10.3390/ijerph17103471
- Bartlett, N. A., Kresta, A., Khan, E., & Heringer, R. (2023). Final report: The transition to adulthood for young adults with disabilities in Manitoba: A “winding up-hill road.” Canadian Centre for Policy Alternatives through Manitoba Research Alliance. https://www.policyalternatives.ca/news-research/the-transition-to-adulthood-for-young-adults-with-disabilities-in-manitoba -a-winding-up-hill-road-d5/
- Bartlett, N. A., & Freeze, T. B. (2019). Assess, sort, classify: “Othering” of Indigenous students in Manitoba’s schools. Exceptionality Education International, 29(2), 99–109. https://doi.org/10.5206/eei.v29i2.9404
- Braun V., & Clarke V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
- Chawrun, I. (2024). Reviewing the limitations of publicly funded adult developmental services in Ontario: Exposing ableist assumptions within the administrative process. Disability & Society, 39(8), 1941–1960. https://doi.org/10.1080/09687599.2023.2165434
- Community Living Manitoba & Public Interest Law Centre. (2019). The future of the VPA: Recommended amendments to the Vulnerable Person Living with a Mental Disability Act. https://www.legalaid.mb.ca/wp-content/uploads/19-10-25-Think-Tank-Report-FINAL.pdf
- Department of Families. (n.d.). How we assess your needs. Government of Manitoba. Retrieved March 23, 2026, from https://www.gov.mb.ca/fs/clds/assess-needs.html
- Dodd, S. (2016). Orientating disability studies to disablist austerity: Applying Fraser’s insights. Disability & Society, 31(2), 149–165. https://doi.org/10.1080/09687599.2016.1152952
- Fetters, M. D., Curry, L. A., & Creswell, J. W. (2013). Achieving integration in mixed methods designs – Principles and practices. Health Services Research, 48(6 Part 2), 2134–2156. https://doi.org/10.1111/1475-6773.12117
- Goodley, D. (2014). Dis/ability studies: Theorising disablism and ableism. Routledge.
- Goodley, D., & Runswick-Cole, K. (2015). Thinking about schooling through dis/ability: A dishuman approach. In T. Corcoran, J. White, & B. Whitburn, (Eds.), Disability studies: Educating for inclusion (pp. 241–253). Sense Publishers
- Government of Manitoba. (2018). Understanding the assessment informed personal supports budget framework: Guide for service providers & agencies. https://www.manitoba.ca/fs/clds/pubs /boa-guide-service-providers-agencies.pdf
- Government of Manitoba. (2021). Pathways to dignity: Rights, safeguards, planning and decision making – Final Report of the Vulnerable Persons Living With a Mental Disability Task Force. https://www.gov.mb.ca/fs/pubs/pathways_to_dignity_report.pdf
- Government of Manitoba. (2023). Bridging to adulthood: A protocol for transitioning students with exceptional needs from school to community. https://www.edu.gov.mb.ca/k12/docs/policy/transition/bridging_to_adulthood_protocol_en.pdf
- Hagiwara, M., Shogren, K. A., & Shaw, L. A. (2019). Examining the impact of respondent-level factors on scores on the Supports Intensity Scale – Children's Version. American Journal on Intellectual and Developmental Disabilities, 124(4), 309–323. https://doi.org/10.1352/1944-7558-124.4.309
- Hagiwara, M., Rifenbark, G. G., Shogren, K. A., & Thompson, J. R. (2021). Impact of different pairings of respondents on scores on the Supports Intensity Scale – Adult Version (SIS-A). American Journal on Intellectual and Developmental Disabilities, 126(5), 361–376. https://doi.org/10.1352/1944-7558-126.5.361
- Hahmann, T., Badets, N., & Hughes, J. (2019). Indigenous people with disabilities in Canada: First Nations people living off reserve, Métis and Inuit aged 15 years and older. Statistics Canada. https://www150.statcan.gc.ca/n1/pub/89-653-x/89-653-x2019005-eng.htm
- Hahmann, T., Lee, H., & Godin, S. (2024). Indigenous foster children living in private households: Rates and sociodemographic characteristics of children and their households. Statistics Canada. https://www150.statcan.gc.ca/n1/pub/41-20-0002/412000022024001-eng.htm
- Human Services Research Institute. (2016). Information brief: Supports Intensity Scale and assessment levels. https://ddsd.vermont.gov/sites/ddsd/files/documents/HSRI-Building_Personal_Supports_Budgets-SIS_and_Assessment_Levels.pdf
- Manitoba Department of Families. (n.d.). Building on abilities. Retrieved March 26, 2026, from https://www.gov.mb.ca/fs/clds/pubs/supports-budget-fact-sheet.pdf
- Manitoba Education and Early Childhood Learning. (n.d.). Student services: Funding for student services/special education. Retrieved March 26, 2026, from https://www.edu.gov.mb.ca/k12/specedu/parent/#:~:text=In%20addition%2C%20there%20is%20a,is%20inclusive%20of%20all%20students
- Manitoba Family Services. (n.d.). Retrieved March 26, 2026, from Supports Intensity Scale (SIS) fact sheet. https://www.gov.mb.ca/fs/clds/pubs/sis_fact-sheet.pdf
- Manitoba Family Services. (2014). Annual report 2013–2014. Government of Manitoba. https://www.gov.mb.ca/fs/about/pubs/fs_ar_2013-2014.pdf
- Moyo, S., Pacheco, L., & Aunos, M. (2024). The depiction of mothers with intellectual disability: Critical discourse analysis of parenting capacity assessments. Journal of Progressive Human Services, 35(1–2), 41–57. https://doi.org/10.1080/10428232.2024.2338311
- Nieminen, J. H. (2023). Unveiling ableism and disablism in assessment: A critical analysis of disabled students’ experiences of assessment and assessment accommodations. Higher Education, 85(3), 613–-636. https://doi.org/10.1007/s10734-022-00857-1
- Ontario Ministry of Children, Community and Social Services. (2021). Passport program guidelines for adults with a developmental disability and their caregivers. Retrieved March 26, 2026, from https://files.ontario.ca/mccss-passport-guidelines-for-adults-with-a-developmental-disability-and-their-caregivers-en-2022-02-23.pdf
- Reber, L., Kreschmer, J. M., James, T. G., Junior, J. D., DeShong, G. L., Parker, S., & Meade, M. A. (2022). Ableism and contours of the attitudinal environment as identified by adults with long-term physical disabilities: A qualitative study. International Journal of Environmental Research and Public Health, 19(12), Article 7469. https://doi.org/10.3390/ijerph19127469
- Schalock, R. L., Thompson, J. R., & Tassé, M. J. (2018). How organizations and systems use supports intensity scales. American Association on Intellectual and Developmental Disabilities. https://www.aaidd.org/docs/default-source/sis-docs/howorganizationsusesis_webrev-final.pdf?sfvrsn=d4953021_0
- Seo, H., Wehmeyer, M. L., Shogren, K. A., Hughes, C., Thompson, J. R., Little, T. D., & Palmer, S. B. (2017). Examining underlying relationships between the Supports Intensity Scale – Adult Version and the Supports Intensity Scale – Children’s Version. Assessment for Effective Intervention, 42(4), 237–247. https://doi.org/10.1177/1534508417705084
- Spagnuolo, N. (2019). Disability, displacement, and the biopolitics of belonging [Doctoral dissertation, York University]. Yorkspace. https://yorkspace.library.yorku.ca/xmlui/bitstream/handle/10315/37664/Spagnuolo_Natalie_2019_PhD.pdf?sequence=2&isAllowed=y
- Thompson, J. R., Anderson, M. H., & Shogren, K. A. (2021). Measuring the support needs of people with intellectual disability and autism spectrum disorder with the Supports Intensity Scale – Adult Version. Education and Training in Autism and Developmental Disabilities, 56(1), 18–26. https://doi.org/10.1177/215416472105600103
- Thompson, J. R., Bryant, B. R., Campbell, E. M., Craig, E. P. M., Hughes, C. M., Rotholz, D. A., Schalock, R. L., Silverman, W. P., Tassé, M. J., & Wehmeyer, M. L. (2004). Supports Intensity Scale: User’s manual. American Association on Intellectual and Developmental Disabilities.
- Thompson, J. R., Bryant, B. R., Schalock, R. L., Shogren, K. A., Tassé, M. J., Wehmeyer, M., Campbell, E. M., Craig, E. M., Hughes, C., & Rotholz, D. A. (2015b). Supports Intensity Scale – Adult Version: User’s Manual. American Association on Intellectual and Developmental Disabilities.
- Thompson, J. R., Schalock, R. L., & Tassé, M. J. (2018a). Evidence for the reliability and validity of the Supports Intensity Scale. American Association on Intellectual and Developmental Disabilities. https://www.aaidd.org/docs/default-source/sis-docs/evidence-for-the-reliabilityandvalidity-of-the-sis.pdf?sfvrsn=7ed3021_0
- Thompson, J. R., Schalock, R. L., & Tassé, M. J. (2018b). How support needs can be used to inform the allocation of resources and funding decisions. American Association on Intellectual and Developmental Disabilities. https://www.aaidd.org/docs/default-source/sis-docs/supportneeds.pdf?sfvrsn=a88b3021_0#:~:text=Based%20on%20information%20from%20a,supports%20budget%E2%80%9D%20can%20be%20created
- Thompson, M. L., Wehmeyer, M. L., Shogren, K. A., Seo, H., & Shogren, K. A. (2016). Supports Intensity Scale – Children’s Version: User’s manual. American Association on Intellectual and Developmental Disabilities.
- United Nations General Assembly. (2006, December 13). Convention on the Rights of Persons with Disabilities (A/RES/61/106). https://digitallibrary.un.org/record/588742?ln=en&v=pdf
- Wehmeyer, M. (2020). Strengths-based approaches to disability, the supports paradigm, and the importance of the supports intensity scales. Revista Educação Especial, 33, 2020 – Publicação Contínua, Article e65. https://doi.org/10.5902/1984686X48249