Abstracts
Mots-clés :
- Aide médicale,
- Personnes inaptes,
- Enquête,
- Réflexion,
- Maladie d'Alzheimer,
- Effets,
- Situation au Québec,
- Modifications législatives,
- Objectifs,
- Méthodologie
Appendices
Bibliographie
- Société Alzheimer du Canada. Prévalence et coûts financiers des maladies cognitives au Canada. Rédacteurs : Chambers LW, Bancej C et McDowell I, 2016.
- Brayne C, Gao L, Dewey M et al. Dementia before death in ageing societies – The promise of prevention and the reality. PLoS Med 2006;3(10):e397See comment in PubMed Commons below.
- Comité d’experts en vue de l’élaboration d’un plan d’action pour la maladie d’Alzheimer. Direction des communications du ministère de la Santé et des Services sociaux du Québec, mai 2009.
- Xie J, Brayne C, Matthews FE et al. Survival times in people with dementia: Analysis from population based cohort study with 14 year follow-up. BMJ 2008;336:258-262.
- Home Instead Senior Care. Americans rank Alzheimer’s as most feared disease, novembre 2012. Accessible à https://www.homeinstead.ca/179/blog/americans-rank-alzheimers-as-most-feared-disease.
- Menzel PT, Chandler-Cramer MC. Advance directives, dementia, and withholding food and water by mouth. Hastings Cent Rep 2014 ; 44:23-37.
- Rietjens JA, van der Maas PJ, Onwuteaka-Philipsen BD et al. Two decades of research on euthanasia from the Netherlands. What have we learnt and what questions remain? J Bioeth Inq 2009;6:271-283.
- Kouwenhoven PS, Raijmakers NJ, van Delden JJ et al. Opinions about euthanasia and advanced dementia: A qualitative study among Dutch physicians and members of the general public. BMC Med Ethics 2015;16:7.
- Dresser R. On legalizing physician-assisted death for dementia. Hastings Cent Rep 2017 ; 47:5-6.
- de Boer ME. Advance directives in dementia care: Perspectives of people with Alzheimer’s disease, elderly care physicians and relatives. PhD Dissertation. Amsterdam : Vrije Universiteit, 2011.
- Draper BM. Suicidal behavior and assisted suicide in dementia. Int Psychogeriatr 2015;27:1601-1611.
- Sheldon T. Dutch approve euthanasia for a patient with Alzheimer’s disease. BMJ 2005; 330:1041.
- Regional Euthanasia Review Committees. Annual Report 2017, mars 2018.
- Loi concernant les soins de fin de vie, LRQ, chapitre S-32.0001.
- Ministère de la Santé et des Services sociaux. Communiqué de presse, 26 octobre 2017. Accessible à http://www.msss.gouv.qc.ca/ministere/salle-de-presse/communique-1418/.
- Parliament of Canada. (June 17, 2016). Statutes of Canada 2016, chapter 3. Bill C-14 (Royal Assent).
- Tomlinson E, Stott J. Assisted dying in dementia: A systematic review of the international literature on the attitudes of health professionals, patients, carers and the public, and the factors associated with these. Intern J Geriatr Psychiatry 2015;30:10-20.
- Cohen J, Marcoux I, Bilsen J et al. Trends in acceptance of euthanasia among the general public in 12 European countries (1981-1999). Eur J Public Health 2006;16:663-669.
- Sheldon T. Dutch geriatrician faces charges over euthanasia case. BMJ 2017;359:j4639.
- de Beaufort ID, van de Vathorst S. Dementia and assisted suicide and euthanasia. J Neurol 2016;263:1463-1467.
- Bravo G, Rodrigue C, Arcand M et al. Are informal caregivers of persons with dementia open to extending medical aid in dying to incompetent patients? Findings from a survey conducted in Quebec, Canada. Alzheimer Dis Assoc Disord 2017 ; Dec 27 [Epub ahead of print].
- Bravo G, Rodrigue C, Arcand M et al. Nurses’ perspectives on whether medical aid in dying should be accessible to incompetent patients with dementia: Findings from a survey conducted in Quebec, Canada. Geriatr Nurs 2018;Jan 3 [Epub ahead of print].
- Bravo G, Rodrigue C, Arcand M et al. Quebec physicians’ perspectives on medical aid in dying for incompetent patients with dementia. Can J Public Health (soumis).
- Bravo G, Trottier L, Rodrigue C et al. Should incompetent patients be given access to medical aid in dying? Views of older adults and comparisons with other stakeholders from Quebec, Canada. Int Psychogeriatr (soumis).
- Bravo G, Rodrigue C, Thériault V et al. Should medical assistance in dying be extended to incompetent patients with dementia? Research protocol of a survey among four groups of stakeholders from Quebec, Canada. JMIR Res Protoc 2017;6:e208.
- Conseil de recherches en sciences humaines du Canada, Conseil de recherches en sciences naturelles et en génie du Canada, Instituts de recherche en santé du Canada. Énoncé de politique des trois Conseils : Éthique de la recherche avec des êtres humains, décembre 2014.
- Dillman DA, Smyth JD, Christian LM. Internet, phone, mail, and mixed-mode surveys: The Tailored Design Method. 4th ed. Hoboken, NJ : John Wiley & Sons, 2014.
- Collège des médecins du Québec et Société québécoise des médecins de soins palliatifs. La sédation palliative en fin de vie. Guide d’exercice, août 2016. Accessible à http://www.cmq.org/page/fr/Soins-medicaux-fin-de-vie.aspx.
- Clark W, Schellenberg G. Les Canadiens et la religion. Tendances sociales canadiennes. Statistique Canada, Catalogue No. 11-008, été 2006.
- Fédération des médecins spécialistes du Québec. Euthanasie : La FMSQ dévoile les faits saillants de son sondage. Conférence de presse, 13 octobre 2009. Accessible à https://www.fmsq.org/en/nouvelle/-/contenu/communique_euthanasie/61811.
- Marcoux I, Boivin A, Mesana L et al. Medical end-of-life practices among Canadian physicians: A pilot study. CMAJ Open 2016;4:e222-9.
- Thériault V, Bravo G, Guay D. Les enjeux de l’aide médicale à mourir pour les patients atteints de la maladie d’Alzheimer. 3e Congrès québécois sur la maladie d’Alzheimer, Sherbrooke, novembre 2016.
- Hendry M, Pasterfield D, Lewis R et al. Why do we want the right to die? A systematic review of the international literature on the views of patients, carers and the public on assisted dying. Palliat Med 2013;27:13-26.
- Kouwenhoven PS, Raijmakers NJ, van Delden JJ, et al. Opinions of health care professionals and the public after eight years of euthanasia legislation in the Netherlands: A mixed methods approach. Palliat Med 2013;27:273-280.
- Bolt EE, Snijdewind MC, Willems DL et al. Can physicians conceive of performing euthanasia in case of psychiatric disease, dementia or being tired of living? J Med Ethics 2015;41:592-598.
- Rietjens JA, van Delden JJ, van der Heide A et al. Terminal sedation and euthanasia: A comparison of clinical practices. Arch Intern Med 2006;166:749-753.
- Regional Euthanasia Review Committees. Annual Report 2016, août 2017.
- Mitchell SL, Black BS, Ersek M et al. Advanced dementia: State of the art and priorities for the next decade. Ann Intern Med 2012;156:45-51.
- Voir, par exemple, http://inmyownwords.com/.
- van Marwijk H, Haverkate I, van Royen P et al. Impact of euthanasia on primary care physicians in the Netherlands. Palliat Med 2007;21:609-614.
- Hertogh CM. The role of advance euthanasia directives as an aid to communication and shared decision-making in dementia. J Med Ethics 2009;35:100-103.
- Collins A, Leier B. L’aide médicale à mourir peut-elle nuire aux soins palliatifs en milieux ruraux et éloignés au Canada ? Can Fam Physician 2017;63:195-198.
- Ménard JP. Les droits des usagers dans les cas d’aide médicale à mourir. Conférence donnée à l’Institut universitaire de gériatrie, Sherbrooke, 20 mars 2017.